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乳腺癌倡导者与科学家之间的合作关系。

The partnership between breast cancer advocates and scientists.

作者信息

Platner Janice H, Bennett L Michelle, Millikan Robert, Barker Mary D G

机构信息

National Breast Cancer Coalition, Washington, DC 20036, USA.

出版信息

Environ Mol Mutagen. 2002;39(2-3):102-7. doi: 10.1002/em.10055.

DOI:10.1002/em.10055
PMID:11921176
Abstract

The National Breast Cancer Coalition (NBCC) is a grassroots organization that represents breast cancer advocates and is committed to eradicating breast cancer. NBCC defines a breast cancer advocate as someone who has been personally affected by the disease (e.g., a breast cancer survivor, family member, or friend), represents a constituency, and is motivated to join the fight against the disease. One of the organization's goals is to ensure that breast cancer advocates have a seat at the table when decisions are made about breast cancer research and policy. To accomplish this goal, NBCC educates advocates so that they can participate in and make meaningful contributions to legislative, scientific, and regulatory decision-making bodies. In addition to creating educational opportunities for advocates, NBCC has spearheaded several initiatives designed to directly increase the quality and quantity of breast cancer research. NBCC has also played a major role in making funding available to breast cancer researchers. Two of NBCC's most notable programs include Project LEAD, an intensive science-training course for breast cancer advocates, and the Environmental Initiative, a collection of activities designed to improve research into the relationship between breast cancer and the environment. Breast cancer advocates trained by NBCC have partnered with the scientific community and individual scientists to improve the peer review, design, and implementation of breast cancer research.

摘要

美国国家乳腺癌联盟(NBCC)是一个基层组织,代表乳腺癌倡导者,致力于根除乳腺癌。NBCC将乳腺癌倡导者定义为那些个人受到该疾病影响的人(例如乳腺癌幸存者、家庭成员或朋友),代表一个选区,并积极投身于抗击该疾病的斗争。该组织的目标之一是确保在做出有关乳腺癌研究和政策的决策时,乳腺癌倡导者能有一席之地。为实现这一目标,NBCC对倡导者进行教育,使他们能够参与立法、科学和监管决策机构的工作并做出有意义的贡献。除了为倡导者创造教育机会外,NBCC还率先开展了多项旨在直接提高乳腺癌研究质量和数量的倡议。NBCC在为乳腺癌研究人员提供资金方面也发挥了重要作用。NBCC最著名的两个项目包括“引领计划”(Project LEAD),这是一个为乳腺癌倡导者开设的强化科学培训课程,以及“环境倡议”(Environmental Initiative),这是一系列旨在改进乳腺癌与环境关系研究的活动。由NBCC培训的乳腺癌倡导者已与科学界和个别科学家合作,以改进乳腺癌研究的同行评审、设计和实施。

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