Stires Hillary, Bado Igor, Brown Thelma, Carlson Martha, Chan Isaac S, Echeverria Gloria V, Ewald Andrew J, Lim Bora, Lloyd Carla, Maues Julia, Oesterreich Steffi, Riter Robert N, Shanahan Kelly, Welm Alana L, Newby Josh
Friends of Cancer Research, Washington, DC, USA.
Baylor College of Medicine, Houston, TX, USA.
NPJ Breast Cancer. 2022 Jun 30;8(1):75. doi: 10.1038/s41523-022-00440-y.
Including patient advocates in basic cancer research ensures that breast cancer research is intentional, supports effective communication with broader audiences, and directly connects researchers with those who they are striving to help. Despite this utility, many cancer research scientists do not work with patient advocates. To understand barriers to engagement and build a framework for enhanced interactions in the future, we hosted a workshop with patient advocates and researchers who do engage, then discussed findings at an international metastatic breast cancer conference to solicit additional feedback and suggestions. Findings demonstrate that researchers are uncertain about how to initiate and maintain relationships with advocates. We offer actionable steps to support researchers working with patient advocates to improve cancer research and accomplish our collective goal of improving lives of those who have been diagnosed with breast cancer. We hope that this initiative will facilitate such collaborative efforts.
让患者权益倡导者参与基础癌症研究，可确保乳腺癌研究具有明确目标，有助于与更广泛受众进行有效沟通，并使研究人员与他们努力帮助的对象直接建立联系。尽管有这些作用，但许多癌症研究科学家并未与患者权益倡导者合作。为了解参与合作的障碍并构建未来加强互动的框架，我们与患者权益倡导者以及实际参与合作的研究人员共同举办了一次研讨会，然后在一次国际转移性乳腺癌会议上讨论了研究结果，以征求更多反馈和建议。研究结果表明，研究人员不确定如何与倡导者建立并维持关系。我们提供了可行的步骤，以支持研究人员与患者权益倡导者合作，改进癌症研究，并实现我们改善乳腺癌患者生活的共同目标。我们希望这一举措将促进此类合作努力。
