护理人员对参与阿尔茨海默病临床试验的看法：他们的期望是什么？这样做值得吗？
Carer impressions of participation in Alzheimer's disease clinical trials: what are their hopes? And is it worth it?
作者信息
Mastwyk Maree, Ritchie Craig W, LoGiudice Dina, Sullivan Karen A, Macfarlane Stephen
机构信息
Mental Health Research Institute, Parkville, Australia.
出版信息
Int Psychogeriatr. 2002 Mar;14(1):39-45. doi: 10.1017/s1041610202008268.
BACKGROUND
We aimed to assess why carers seek participation for their relatives in clinical trials of Alzheimer's disease (AD) medications, and to assess carer impressions of the value of trial participation.
METHOD
A retrospective questionnaire was sent to 31 carers of participants in clinical trials for AD conducted at the Mental Health Research Institute and the National Aging Research Institute between January 1997 and December 1999.
RESULTS
Twenty-five questionnaires (81%) were returned, completed to an extent to permit analysis. Helping a relative feel better, contributing to medical science, and hoping for a cure were the main reasons for trial participation. In general, carers found the regular consultation with research staff supportive and would recommend trial participation to others.
CONCLUSION
A greater understanding of the motivations of carers may aid the recruitment and retention of participants in clinical trials.
背景
我们旨在评估护理人员为何寻求让其亲属参与阿尔茨海默病（AD）药物的临床试验，并评估护理人员对试验参与价值的看法。
方法
向1997年1月至1999年12月期间在心理健康研究所和国家衰老研究所进行的AD临床试验参与者的31名护理人员发送了一份回顾性调查问卷。
结果
共收回25份问卷（81%），其完成程度足以进行分析。帮助亲属感觉更好、为医学科学做出贡献以及希望治愈是参与试验的主要原因。总体而言，护理人员发现与研究人员的定期咨询很有帮助，并会向其他人推荐参与试验。
结论
更好地了解护理人员的动机可能有助于临床试验参与者的招募和留存。
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