Yardley L, Dibb B, Osborne G
Department of Psychology, University of Southampton, Highfield, UK.
Clin Otolaryngol Allied Sci. 2003 Oct;28(5):436-41. doi: 10.1046/j.1365-2273.2003.00740.x.
The aim of this study was to identify the factors associated with better or worse quality of life in a sample of people with Menière's disease drawn from a UK self-help group (the Menière's Society) and to assess the forms of support on which the respondents could draw. A postal survey was sent to 1000 randomly selected group members, containing validated questionnaires assessing: (1) quality of life (the Short Form 36 (SF-36)); (2) factors that might predict quality of life; and (3) usage of resources provided to members by the Menière's Society. A total of 509 members completed the main survey, and 370 the second part of the survey. Factors associated with a less good quality of life included more severe vertigo, pressure in the ear, hearing loss and tinnitus, being younger, being female, living alone, having a lower occupational status and believing that the attitude of the consultant is unhelpful. Levels of vertigo severity in this sample were similar to those found in hospital samples, but it is possible that these respondents may differ in other respects from patients who do not join a self-help group.
本研究的目的是在一个从英国自助组织（美尼尔氏病协会）抽取的美尼尔氏病患者样本中，确定与生活质量较好或较差相关的因素，并评估受访者可利用的支持形式。向1000名随机挑选的组织成员发送了一份邮寄调查问卷，其中包含经过验证的问卷，用于评估：（1）生活质量（简短健康调查问卷36项简表（SF-36））；（2）可能预测生活质量的因素；以及（3）美尼尔氏病协会向成员提供的资源的使用情况。共有509名成员完成了主要调查，370名完成了调查的第二部分。与生活质量较差相关的因素包括更严重的眩晕、耳部压迫感、听力损失和耳鸣、年龄较小、女性、独居、职业地位较低以及认为顾问的态度无帮助。该样本中的眩晕严重程度水平与医院样本中的相似，但这些受访者在其他方面可能与未加入自助组织的患者有所不同。
