Varni James W, Burwinkle Tasha M, Seid Michael, Skarr Douglas
Department of Landscape Architecture and Urban Planning, College of Architecture and the Department of Pediatrics, Texas A and M University, College Station, TX 77843, USA.
Ambul Pediatr. 2003 Nov-Dec;3(6):329-41. doi: 10.1367/1539-4409(2003)003<0329:tpaapp>2.0.co;2.
The application of health-related quality of life (HRQOL) as a pediatric population health measure may facilitate risk assessment and resource allocation, the tracking of community health, the identification of health disparities, and the determination of health outcomes from interventions and policy decisions.
To determine the feasibility, reliability, and validity of the 23-item PedsQL 4.0 (Pediatric Quality of Life Inventory) Generic Core Scales as a measure of pediatric population health for children and adolescents.
Mail survey in February and March 2001 to 20 031 families with children ages 2-16 years throughout the State of California encompassing all new enrollees in the State's Children's Health Insurance Program (SCHIP) for those months and targeted language groups.
The PedsQL 4.0 Generic Core Scales (Physical, Emotional, Social, School Functioning) were completed by 10 241 families through a statewide mail survey to evaluate the HRQOL of new enrollees in SCHIP.
The PedsQL 4.0 evidenced minimal missing responses, achieved excellent reliability for the Total Scale Score (alpha =.89 child;.92 parent report), and distinguished between healthy children and children with chronic health conditions. The PedsQL 4.0 was also related to indicators of health care access, days missed from school, days sick in bed or too ill to play, and days needing care.
The results demonstrate the feasibility, reliability, and validity of the PedsQL 4.0 as a pediatric population health outcome. Measuring pediatric HRQOL may be a way to evaluate the health outcomes of SCHIP.
将健康相关生活质量(HRQOL)应用于儿科人群健康衡量,可能有助于风险评估和资源分配、社区健康跟踪、健康差异识别以及干预措施和政策决策的健康结果判定。
确定23项儿童生活质量量表4.0(PedsQL 4.0,儿童生活质量量表通用核心量表)作为儿童和青少年儿科人群健康衡量指标的可行性、可靠性和有效性。
2001年2月和3月对加利福尼亚州20031个有2至16岁儿童的家庭进行邮件调查,涵盖该州儿童健康保险计划(SCHIP)在这几个月的所有新参保者以及目标语言群体。
通过全州范围的邮件调查,10241个家庭完成了PedsQL 4.0通用核心量表(身体、情感、社会、学校功能),以评估SCHIP新参保者的HRQOL。
PedsQL 4.0显示出极少的缺失回答,总量表得分具有出色的可靠性(儿童α系数 = 0.89;家长报告α系数 = 0.92),并能区分健康儿童和患有慢性健康问题的儿童。PedsQL 4.0还与医疗保健可及性指标、缺课天数、因病卧床或病得无法玩耍的天数以及需要护理的天数相关。
结果证明了PedsQL 4.0作为儿科人群健康结果的可行性、可靠性和有效性。测量儿科HRQOL可能是评估SCHIP健康结果的一种方式。