Mandich A D, Polatajko H J, Rodger S
Faculty of Health Sciences, School of Occupational Therapy, The University of Western Ontario, Ont., N6G 1H1 London, Canada.
Hum Mov Sci. 2003 Nov;22(4-5):583-95. doi: 10.1016/j.humov.2003.09.011.
Children with developmental coordination disorder (DCD) experience difficulty participating in the typical activities of childhood and are known to have a more sedentary pattern of activities than their peers. Little research has been done to investigate the impact of these deficits on the lives of children with DCD and the importance of their participation in the typical activities of childhood. This qualitative study explored the impact of the disorder and the importance of participation for children with DCD from the perspective of the parent. Twelve in-depth interviews were conducted with parents of children with DCD who attended a university clinic specializing in using the Cognitive Orientation to daily Occupational Performance (CO-OP) approach, a cognitive-based intervention. Findings revealed that incompetence in everyday activities had serious negative effects for the children. Conversely, intervention that was focused on enablement at the activity and participation level had a significant positive impact on the children's quality of life. Emerging themes highlighted the notion that performance competency played an important role in being accepted by peers and being able "to be part of the group". As well, parents reported that successful participation built confidence in their children and allowed them to try other new activities. The World Health Organization's International Classification of Functioning, Disability, and Health provides a unique framework for analyzing and understanding the impact of the physical disability on the lives of families with children with DCD. Results illustrate how intervention that focuses on enabling children to choose their own functional goals in the area of physical activity has important implications for enabling participation and building the social networks of children with DCD.
患有发育性协调障碍（DCD）的儿童在参与儿童期的典型活动时会遇到困难，并且已知他们的活动模式比同龄人更加久坐不动。很少有研究调查这些缺陷对患有DCD的儿童生活的影响以及他们参与儿童期典型活动的重要性。这项定性研究从家长的角度探讨了该障碍的影响以及参与对患有DCD的儿童的重要性。对参加一家专门使用基于认知的日常职业表现认知取向（CO-OP）方法进行干预的大学诊所的患有DCD儿童的家长进行了12次深度访谈。研究结果表明，日常活动能力不足对儿童有严重的负面影响。相反，专注于在活动和参与层面实现赋能的干预措施对儿童的生活质量有显著的积极影响。新出现的主题强调了表现能力在被同龄人接受和“融入群体”方面发挥重要作用的观点。此外，家长报告说，成功的参与增强了孩子的自信心，并使他们能够尝试其他新活动。世界卫生组织的《国际功能、残疾和健康分类》为分析和理解身体残疾对患有DCD儿童家庭生活的影响提供了一个独特的框架。研究结果说明了专注于使儿童能够在体育活动领域选择自己的功能目标的干预措施对于促进患有DCD的儿童的参与和建立社交网络具有重要意义。
