类风湿关节炎患者对自身功能残疾和疼痛的认知：患者与其配偶之间的差异以及与幸福感的关联。

Perceptions about perceived functional disabilities and pain of people with rheumatoid arthritis: differences between patients and their spouses and correlates with well-being.

作者信息

Riemsma R P, Taal E, Rasker J J

机构信息

University of Twente, Department of Communication Studies, Postbus 217, 7500 AE Enschede, The Netherlands.

出版信息

Arthritis Care Res. 2000 Oct;13(5):255-61. doi: 10.1002/1529-0131(200010)13:5<255::aid-anr3>3.0.co;2-3.

DOI:10.1002/1529-0131(200010)13:5<255::aid-anr3>3.0.co;2-3

PMID:14635293

Abstract

OBJECTIVE

In this study we examined the differences in perceptions of the patient's health status between rheumatoid arthritis (RA) patients and their spouses, and correlates of these differences with patients' and spouses' well-being.

METHODS

A sample of 188 couples with one member receiving treatment for RA were selected from the rheumatology clinics in Twente, The Netherlands. The mean age of both RA patients and spouses was 56 years. Respondents completed questionnaires, including estimations of both patients and spouses on the patient's functional disabilities and pain, and scales on affect and marital commitment for patients and spouses.

RESULTS

Differences in estimations of patients and spouses were considerable. Both over- and underestimations of the patient's functional disabilities by the spouse were associated with the patient's poorer mental health status. Overestimations of the patient's functional disabilities were associated with poorer mental health among spouses.

CONCLUSION

It is essential that any support intended by the spouse is in accordance with the patient's needs. If the patient's condition is misperceived by the spouse, this can lead to ineffective and inappropriate support being given.

摘要