Athale Ninad, Sturley Ann, Skoczen Steven, Kavanaugh Arthur, Lenert Leslie
Health Services Research and Development, Veterans Affairs San Diego Healthcare System, Veterans Medical Research Foundation, University of California, San Diego (UCSD), California 92161, USA.
J Rheumatol. 2004 Feb;31(2):223-8.
To describe a Web-based computer health assessment survey for patients with rheumatoid arthritis (RA) and to evaluate the survey in comparison with current paper versions.
Utilizing data from a study on RA, we compared results from 43 patients attending a university-based clinic who were each given a paper and a demonstration computer version of a patient self-assessment questionnaire including multiple-choice questions from a multi-dimensional Health Assessment Questionnaire (HAQ); visual analog scales (VAS) for pain, fatigue, and global disease severity; and a tender and swollen joint count reporting tool. Patients were given optional followup surveys to determine their opinion of the computer program.
High correlations (intraclass correlation coefficient > 0.9) were seen across methods for the 10-item HAQ and psychological distress scores and the VAS scores for pain and global disease severity. Moderate correlation was observed for the self-efficacy scores, the VAS scores for fatigue, and tender joint counts. The data also revealed a small shift in the mean scores for the HAQ and self-efficacy questions, with patients reporting slightly higher scores on the computer instrument. Overall, patient opinions of the uniquely designed joint count tool were good, with 71% of responding patients answering favorably.
Web-based computer versions of patient self-assessment surveys in RA are comparable to paper versions, and their use in clinics or over the Internet could dramatically facilitate the ability of physicians to monitor patients' health.
描述一项针对类风湿关节炎（RA）患者的基于网络的计算机健康评估调查，并与当前的纸质版本进行比较评估该调查。
利用一项关于RA的研究数据，我们比较了43名在大学诊所就诊的患者的结果，这些患者每人都收到了一份纸质版和一份演示计算机版的患者自我评估问卷，问卷包括来自多维健康评估问卷（HAQ）的多项选择题；疼痛、疲劳和整体疾病严重程度的视觉模拟量表（VAS）；以及一个压痛和肿胀关节计数报告工具。患者可选择接受后续调查以确定他们对计算机程序的看法。
在10项HAQ、心理困扰评分以及疼痛和整体疾病严重程度的VAS评分方面，不同方法之间呈现出高度相关性（组内相关系数>0.9）。自我效能感评分、疲劳的VAS评分以及压痛关节计数观察到中度相关性。数据还显示，HAQ和自我效能感问题的平均得分有小幅变化，患者在计算机工具上报告的得分略高。总体而言，患者对独特设计的关节计数工具的评价良好，71%的回应患者给出了肯定回答。
RA患者自我评估调查的基于网络的计算机版本与纸质版本相当，在诊所或通过互联网使用它们可以极大地促进医生监测患者健康的能力。
