Ritter G, Elias W, Wilström J, Poser S
Rehabilitation (Stuttg). 1978 May;17(2):108-15.
Within the framework of an epidemiologic field study conducted in South Niedersachsen a standardised questionnaire was used to obtain data on the social and medical situation of persons with multiple sclerosis. Of the 195 people with multiple sclerosis questioned in that area in 1976 answers were received from 178 (91%). The mean age was 46 years, the average history of disease 15 years. Family status and social position corresponded to social average. A social downfall as a result of the disease was not found to have taken place. Approximately 50% who had been employed prior to the disease (N = 147) had given up their jobs at the time of the survey. The monthly net income was found to be average. Of the studied persons 42% were living in their own houses or flats. A lower percentage, compared to the general public, was living in lodgings (58% instead of 65,7%). The majority (56%) was living in flats suitable for the disabled. 13% of the surveyed persons lived alone, 5% in homes. Social care was found to be very poor in comparison with medical treatment. The introduction of compulsory notification for this disease was advocated by 83% of the people questioned.
在南下萨克森州进行的一项流行病学实地研究框架内,使用标准化问卷获取有关多发性硬化症患者社会和医疗状况的数据。1976年在该地区接受询问的195名多发性硬化症患者中,有178人(91%)回复了问卷。平均年龄为46岁,平均病程为15年。家庭状况和社会地位与社会平均水平相当。未发现因该疾病导致社会地位下降。在患病前有工作的人(N = 147)中,约50%在调查时已放弃工作。月净收入为平均水平。在被研究的人群中,42%居住在自己的房屋或公寓中。与普通公众相比,居住在出租房中的比例较低(58%,而普通公众为65.7%)。大多数人(56%)居住在适合残疾人的公寓中。13%的被调查者独自生活,5%住在养老院。与医疗护理相比,社会护理状况很差。83%的被询问者主张对该疾病实行强制报告。