Martínez-Martín Pablo, Benito-León Julián, Alonso Fernando, Catalán Maria José, Pondal Margarita, Zamarbide Ivana
Neuroepidemiology Unit, National Centre for Epidemiology, Carlos III Institute of Public Health, Madrid, Spain.
Mov Disord. 2004 Mar;19(3):312-8. doi: 10.1002/mds.10656.
Patient- and caregiver-based scores were compared and agreement levels ascertained to determine the reliability of proxy evaluation of Parkinson's Disease (PD) patients' health-related quality of life (HRQoL) using the EuroQoL and PD questionnaire (PDQ)-8. Of 72 patient-caregiver pairs, 64 (88.88%) returned the questionnaires. The degree of agreement varied for individual dimensions. Proxy evaluation of PD patients' HRQoL showed limitations mainly with assessments using the EuroQoL and especially in patients with severe disease and depression.
比较了基于患者和照顾者的评分，并确定了一致性水平，以使用欧洲五维度健康量表（EuroQoL）和帕金森病问卷（PDQ）-8来确定帕金森病（PD）患者健康相关生活质量（HRQoL）代理评估的可靠性。在72对患者-照顾者中，64对（88.88%）返回了问卷。各个维度的一致程度有所不同。PD患者HRQoL的代理评估主要在使用欧洲五维度健康量表进行评估时存在局限性，尤其是在重症和抑郁患者中。
