Burker Eileen J, Sedway Jan, Carone Stacia
Department of Allied Health Sciences, University of North Carolina at Chapel Hill, 27599-7205, USA.
Pediatr Pulmonol. 2004 Nov;38(5):413-8. doi: 10.1002/ppul.20090.
Now that more individuals with cystic fibrosis (CF) are living into adulthood, vocational attainment is an increasingly important consideration. Work is a key factor in quality of life. The purpose of the present paper was to evaluate the factors that are associated with work status in 183 adults with CF. Approximately half of the participants were working at the time of evaluation, an impressive figure given that the mean forced expired volume in 1 sec (FEV1) was 31.9%. The average number of hours worked was 32.7 hr/week. The majority of individuals were employed in professional, technical, or managerial occupations (accounting, teaching, law, or social work). A third were employed in clerical and sales occupations, and the remaining individuals were employed in a wide range of other occupations (hotel manager, undercover shopper, artist, or dental technician). Interestingly, FEV1 and age did not differentiate between subjects who were working and those who were not. Individuals who were working had significantly lower depression scores and a higher educational level than those who were not working. Future research is needed to determine whether it is the increased socialization and the resulting social support that may come from a work environment, or a reduction in financial stress because of better income and health benefits that helps to explain this difference. Alternatively, work may serve as a distraction from the symptoms of CF. It is likely that those with higher educational levels had more professional jobs that were more easily modified as health declined. Future research needs to assess how career choices are made, and what factors into a patient's decision to keep working.
鉴于越来越多的囊性纤维化(CF)患者步入成年期,职业成就成为一个日益重要的考量因素。工作是生活质量的关键因素。本文旨在评估183名成年CF患者中与工作状态相关的因素。在评估时,约一半的参与者正在工作,考虑到1秒用力呼气容积(FEV1)的平均值为31.9%,这一数字令人印象深刻。平均工作时长为每周32.7小时。大多数人从事专业、技术或管理职业(会计、教学、法律或社会工作)。三分之一的人从事文职和销售工作,其余的人从事广泛的其他职业(酒店经理、暗访员、艺术家或牙科技师)。有趣的是,FEV1和年龄并不能区分工作的人和不工作的人。工作的人比不工作的人抑郁得分显著更低,教育水平更高。未来需要进行研究,以确定是工作环境带来的社交增加及由此产生的社会支持,还是因收入和健康福利改善导致的经济压力减轻,有助于解释这种差异。或者,工作可能会分散对CF症状的注意力。很可能教育水平较高的人有更多专业性工作,随着健康状况下降,这些工作更容易调整。未来的研究需要评估职业选择是如何做出的,以及哪些因素影响患者继续工作的决定。