Abelson Julia, Forest Pierre-Gerlier, Casebeer Ann, Mackean Gail
Centre for Health Economics and Policy Analysis and Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton L8N 3Z5, Canada.
J Health Serv Res Policy. 2004 Oct;9(4):205-12. doi: 10.1258/1355819042250203.
Health policy decision-makers are grappling with increasingly complex and ethically controversial decisions at a time when citizens are demanding more involvement in these decision processes.
To assess and revise a set of guiding principles for the design of public involvement processes generated from a synthesis of public participation design and evaluation frameworks that can be used to inform the design and evaluation of future public participation processes in the health sector.
Six focus groups held in five Canadian provinces comprising citizens with considerable experience of public participation processes.
Our findings suggest that citizen participants are highly critical of, and discerning about,their public participation experiences. Yet, they are optimistic and determined to contribute in meaningful ways to future public policy processes. They are clear about where improvements are needed and give top priority to what information is shared, and how, among participants and decision-makers. The views of experienced citizens mapped well onto most of the prior principles of public involvement with a few modifications. First, participants gave greater emphasis to the content and balance of information for the purposes of building trust and credibility between citizens and decision-makers. Second, participants viewed themselves, as well as decision-makers, as sources of information to be shared through the consultation process. Finally, participants stressed the importance of getting the information and communication principles right over addressing all other principles.
在公民要求更多地参与决策过程之际，卫生政策决策者正面临着日益复杂且在伦理上存在争议的决策。
评估并修订一套源自公众参与设计与评估框架综合的公共参与过程设计指导原则，这些原则可用于为未来卫生部门的公共参与过程的设计与评估提供参考。
在加拿大五个省份举行了六个焦点小组会议，参与者为有丰富公众参与过程经验的公民。
我们的研究结果表明，公民参与者对他们的公众参与经历高度批评且有辨别力。然而，他们持乐观态度，并决心以有意义的方式为未来的公共政策过程做出贡献。他们清楚需要改进的地方，并将参与者与决策者之间共享何种信息以及如何共享信息列为首要优先事项。有经验的公民的观点与大多数先前的公众参与原则高度契合，但有一些修改。首先，为了在公民与决策者之间建立信任和信誉，参与者更加强调信息的内容和平衡。其次，参与者将自己以及决策者视为通过协商过程共享的信息来源。最后，参与者强调在遵循所有其他原则之前，正确掌握信息和沟通原则的重要性。
