Burgess Michael M
W. Maurice Young Centre for Applied Ethics and the Department of Medical Genetics, University of British Columbia, Canada.
J Bioeth Inq. 2004;1(1):4-13. doi: 10.1007/BF02448901.
Genome Canada has funded a research project to evaluate the usefulness of different forms of ethical analysis for assessing the moral weight of public opinion in the governance of genomics. This paper will describe a role of public consultation for ethical analysis and a contribution of ethical analysis to public consultation and the governance of genomics/biotechnology. Public consultation increases the robustness of ethical analysis with a more diverse set of moral experiences. Consultation must be carefully and respectfully designed to generate sufficiently diverse and rich accounts of moral experiences. Since dominant groups tend to define ethical or policy issues in a manner that excludes some interests or perspectives, it is important to identify the range of interests that diverse publics hold before defining the issue and scope of the discussion and the premature foreclosure of ethical dialogue. Consequently, a significant contribution of ethical dialogue strengthened by social analysis is to consider the context and non-policy use of power to govern genomics and to sustain social debate on enduring ethical issues.
加拿大基因组组织资助了一个研究项目，以评估不同形式的伦理分析对于评估基因组学治理中公众舆论的道德权重的有用性。本文将描述公众咨询在伦理分析中的作用，以及伦理分析对公众咨询和基因组学/生物技术治理的贡献。公众咨询通过更丰富多样的道德体验增强了伦理分析的稳健性。咨询必须精心且尊重地设计，以产生足够多样和丰富的道德体验描述。由于主导群体倾向于以排除某些利益或观点的方式界定伦理或政策问题，因此在确定讨论的问题和范围以及过早终止伦理对话之前，识别不同公众所持有的利益范围很重要。因此，通过社会分析强化的伦理对话的一个重要贡献是考虑治理基因组学的权力背景和非政策用途，并维持关于持久伦理问题的社会辩论。
