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照顾患有阿尔茨海默病和帕金森病的家人:需求、挑战与满意度。

Caring for family with Alzheimer's disease and Parkinson's disease: needs, challenges and satisfaction.

作者信息

Habermann Barbara, Davis Linda Lindsey

机构信息

Graduate Nursing, Scientist, Center for Aging, Univeristy of Alabama, Birmingham 35294-1210, USA.

出版信息

J Gerontol Nurs. 2005 Jun;31(6):49-54. doi: 10.3928/0098-9134-20050601-11.

DOI:10.3928/0098-9134-20050601-11
PMID:16138530
Abstract

A convenience sample of 40 family members caring for an individual with either Alzheimer's disease (AD) or Parkinson's disease (PD) completed the Caregiver Assistance Measure (CAM) to identify the types of assistance that would be most helpful in caring for a family member at home. The CAM measures three categories or types of assistance: care knowledge and skills, self-care, and resource acquisition. Caregivers also completed open-ended questions about the difficulties and the satisfactions of caregiving. The PD and AD caregivers agreed on the importance of 75% of the assistance items on the CAM. In addition, both groups of caregivers identified issues related to care knowledge and skills and selfcare as the most difficult aspects of caregiving. These findings suggest many caregiver needs may be common across chronic illness populations and provide initial support for the development and testing of standardized interventions for caregivers.

摘要

一个由40名照顾患有阿尔茨海默病(AD)或帕金森病(PD)患者的家庭成员组成的便利样本,完成了照顾者援助措施(CAM),以确定在家照顾家庭成员时最有帮助的援助类型。CAM衡量三类或三种援助类型:护理知识和技能、自我护理以及资源获取。照顾者还完成了关于照顾困难和满意度的开放式问题。PD和AD照顾者对CAM上75%的援助项目的重要性达成了共识。此外,两组照顾者都将与护理知识和技能以及自我护理相关的问题确定为照顾中最困难的方面。这些发现表明,许多照顾者的需求可能在慢性病患者群体中是常见的,并为照顾者标准化干预措施的开发和测试提供了初步支持。

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