Mazanec Polly, Daly Barbara J, Ferrell Betty Rolling, Prince-Paul Maryjo
Frances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH, USA.
Oncol Nurs Forum. 2011 May;38(3):307-13. doi: 10.1188/11.ONF.307-313.
PURPOSE/OBJECTIVES: To explore the new and complex phenomenon of distance caregiving in the advanced cancer population.
Qualitative.
A large comprehensive cancer center in the midwestern region of the United States.
14 distance caregivers of parents with advanced cancer.
Patients with advanced lung, gastrointestinal, and gynecologic malignancies consented to have their distance caregiving adult children contacted to participate in the study. Responses to three open-ended questions guided the tape-recorded telephone interviews with the distance caregivers. Following transcription, content analysis with inductive coding was performed.
Two major themes, communication and control, and five subthemes, benefits and burdens of distance caregiving, dealing with uncertainty, direct action through information seeking, protecting, and staying connected, emerged from the data.
Distance caregivers experience some of the same stressors that local caregivers of patients with cancer experience. In addition, they have unique psychosocial needs related to the burden of geographic distance.
Distance caregivers could benefit from nursing interventions targeted at their unique needs. Innovative interventions using Web-based computer technology for improved communication, as well as supportive care interventions, may be helpful.
目的/目标：探讨晚期癌症患者群体中远程照护这一新的复杂现象。
定性研究。
美国中西部地区的一家大型综合癌症中心。
14名晚期癌症患者的远程照护子女。
晚期肺癌、胃肠道癌和妇科恶性肿瘤患者同意让其进行远程照护的成年子女参与研究。对三个开放式问题的回答指导了对远程照护者的电话录音访谈。转录后，进行了归纳编码的内容分析。
数据中出现了两个主要主题，即沟通与控制，以及五个子主题，分别是远程照护的益处与负担、应对不确定性、通过信息寻求采取直接行动、保护以及保持联系。
远程照护者经历了一些与癌症患者的本地照护者相同的压力源。此外，他们因地理距离带来的负担而有独特的心理社会需求。
远程照护者可能会从针对其独特需求的护理干预中受益。使用基于网络的计算机技术改善沟通的创新干预措施以及支持性护理干预措施可能会有所帮助。
