Tremont Geoffrey, Davis Jennifer Duncan, Bishop Duane S
Department of Psychiatry and Human Behavior, Brown Medical School, Providence, RI, USA.
Dement Geriatr Cogn Disord. 2006;21(3):170-4. doi: 10.1159/000090699. Epub 2006 Jan 3.
The relationship between family functioning and dementia caregiving is complex. The present study examined the interrelationships between family functioning, caregiver burden, and patient characteristics. Participants were 72 live-in, family caregivers of patients with mild (n = 47) or moderate dementia (n = 25). Caregivers completed measures of burden, family functioning, depression, and anxiety. Ratings of patients' memory/behavior problems and patients' activities of daily living were also collected. Results indicated that higher levels of caregiver burden were significantly associated with increased caregiver depression and anxiety, greater frequency of memory and behavior problems in the dementia patient, worse activities of daily living, and poorer family functioning. Even after controlling for caregiver depression, caregiver anxiety, and frequency of memory/behavior problems in dementia patients, poorer family functioning continued to be associated with higher levels of caregiver burden. Caregivers with high levels of burden reported greater family dysfunction in communication and roles, regardless of their relationship to the patient (i.e., spouse or child). These findings suggest that including a family systems component in caregiver interventions may be beneficial in reducing burden in these very distressed individuals.
家庭功能与痴呆症护理之间的关系很复杂。本研究考察了家庭功能、照顾者负担和患者特征之间的相互关系。参与者为72名居家照顾轻度痴呆患者(n = 47)或中度痴呆患者(n = 25)的家庭照顾者。照顾者完成了负担、家庭功能、抑郁和焦虑方面的测量。还收集了对患者记忆/行为问题的评分以及患者的日常生活活动情况。结果表明,照顾者负担水平较高与照顾者抑郁和焦虑增加、痴呆症患者记忆和行为问题出现频率更高、日常生活活动能力更差以及家庭功能更差显著相关。即使在控制了照顾者抑郁、照顾者焦虑以及痴呆症患者记忆/行为问题出现频率之后,较差的家庭功能仍然与较高水平的照顾者负担相关。负担水平较高的照顾者报告在沟通和角色方面存在更大的家庭功能障碍,无论其与患者的关系如何(即配偶或子女)。这些发现表明,在照顾者干预措施中纳入家庭系统组成部分可能有助于减轻这些极度痛苦个体的负担。