挪威多发性硬化症国家能力中心和国家多发性硬化症登记处——临床实践与研究的资源。

The Norwegian Multiple Sclerosis National Competence Centre and National Multiple Sclerosis registry -- a resource for clinical practice and research.

作者信息

Myhr K-M, Grytten N, Aarseth J H, Nyland H

机构信息

Multiple Sclerosis National Competence Centre, Haukeland University Hospital, Bergen, Norway.

出版信息

Acta Neurol Scand Suppl. 2006;183:37-40. doi: 10.1111/j.1600-0404.2006.00613.x.

DOI:10.1111/j.1600-0404.2006.00613.x

PMID:16637927

Abstract

The Norwegian Multiple Sclerosis National Competence Centre was established at the Department of Neurology, Haukeland University Hospital, Bergen in 1996. Promotion of research, supervision and education of doctors and other health care professionals in Norway are the main responsibilities of the Centre. The centre has established national networks for MS care and research and has provided supervision and education of doctors and other health care professionals in Norway. Guidelines for diagnosis and treatment of MS have been established. The National Multiple Sclerosis Registry was established in 1998 and includes by January 2006 50-60% of all MS patients in Norway. Through a national collaboration, the registry aims for inclusion of a biobank unit for collection of cerebrospinal fluid and serum, DNA, and tissue samples.

摘要

挪威多发性硬化症国家能力中心于1996年在卑尔根市豪克兰大学医院神经科成立。该中心的主要职责是促进挪威医生及其他医疗保健专业人员的研究、监督和教育工作。该中心已建立了全国性的多发性硬化症护理和研究网络，并为挪威的医生及其他医疗保健专业人员提供监督和教育。多发性硬化症的诊断和治疗指南已经制定。国家多发性硬化症登记处成立于1998年，截至2006年1月，登记了挪威50%至60%的多发性硬化症患者。通过全国性合作，该登记处的目标是设立一个生物样本库，用于收集脑脊液、血清、DNA和组织样本。