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提升夏威夷原住民在癌症研究和项目规划方面的能力。“伊米·黑尔”的一项遗产。

Building Native Hawaiian capacity in cancer research and programming. A legacy of 'Imi Hale.

作者信息

Braun Kathryn L, Tsark Joann U, Santos LorrieAnn, Aitaoto Nia, Chong Clayton

机构信息

Department of Public Health Sciences, University of Hawaii, Honolulu, Hawaii, USA.

出版信息

Cancer. 2006 Oct 15;107(8 Suppl):2082-90. doi: 10.1002/cncr.22157.

DOI:10.1002/cncr.22157
PMID:16977599
Abstract

In 2000, cancer health indicators for Native Hawaiians were worse than those of other ethnic groups in Hawai'i, and Native Hawaiians were under-represented in research endeavors. To build capacity to reduce cancer health disparities, 'Imi Hale applied principles of community-based participatory research (CBPR) and empowerment theory. Strategies included: 1) engaging Native Hawaiians in defining cancer priorities; 2) developing culturally appropriate processes and products; 3) supplementing primary and secondary cancer prevention activities; 4) offering skills training and technical assistance; and 5) providing an infrastructure to support culturally appropriate research. Between 2000 and 2005, 'Imi Hale involved more than 8000 Native Hawaiians in education, training, and primary and secondary prevention activities; developed 24 culturally tailored educational products (brochures, curricula, and self-help kits); secured $1.1 million in additional program and research funds; trained 98 indigenous researchers, 79 of whom worked on research projects; and engaged more than 3000 other Native Hawaiians as research participants and advisors. Evidence of empowerment was seen in increased individual competence, enhanced community capacity and participation, reduced barriers, and improved supports to address cancer in Hawaiian communities. Operationalizing CBPR and empowerment requires a commitment to involving as many people as possible, addressing community priorities, following cultural protocol, developing and transferring skills, and supporting an infrastructure to reduce barriers and build supports to sustain change. This approach is time consuming, but necessary for building competence and capacity, especially in indigenous and minority communities. Cancer 2006. (c) 2006 American Cancer Society.

摘要

2000年,夏威夷原住民的癌症健康指标比夏威夷其他种族群体的指标更差,而且夏威夷原住民在研究工作中的代表性不足。为了增强减少癌症健康差距的能力,“伊米·黑尔”('Imi Hale)应用了基于社区的参与性研究(CBPR)原则和赋权理论。策略包括:1)让夏威夷原住民参与确定癌症防治重点;2)开发符合文化习俗的流程和产品;3)补充癌症一级和二级预防活动;4)提供技能培训和技术援助;5)提供基础设施以支持符合文化习俗的研究。在2000年至2005年期间,“伊米·黑尔”让8000多名夏威夷原住民参与教育、培训以及癌症一级和二级预防活动;开发了24种符合文化习俗的教育产品(宣传册、课程和自助工具包);获得了110万美元的额外项目和研究资金;培训了98名本土研究人员,其中79人参与研究项目;让3000多名其他夏威夷原住民作为研究参与者和顾问。在个人能力增强、社区能力和参与度提高、障碍减少以及夏威夷社区应对癌症的支持得到改善等方面都体现了赋权的成效。实施CBPR和赋权需要致力于让尽可能多的人参与进来,解决社区优先事项,遵循文化规范,培养和传授技能,并支持建立基础设施以减少障碍和构建支持体系以维持变革。这种方法耗时,但对于培养能力尤其是在本土和少数族裔社区培养能力而言是必要的。《癌症》2006年。(c)2006年美国癌症协会。

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