Cotton Sian, Puchalski Christina M, Sherman Susan N, Mrus Joseph M, Peterman Amy H, Feinberg Judith, Pargament Kenneth I, Justice Amy C, Leonard Anthony C, Tsevat Joel
Health Services Research & Development, VA Medical Center, Cincinnati, OH, USA.
J Gen Intern Med. 2006 Dec;21 Suppl 5(Suppl 5):S5-13. doi: 10.1111/j.1525-1497.2006.00642.x.
Spirituality and religion are often central issues for patients dealing with chronic illness. The purpose of this study is to characterize spirituality/religion in a large and diverse sample of patients with HIV/AIDS by using several measures of spirituality/religion, to examine associations between spirituality/religion and a number of demographic, clinical, and psychosocial variables, and to assess changes in levels of spirituality over 12 to 18 months.
We interviewed 450 patients from 4 clinical sites. Spirituality/religion was assessed by using 8 measures: the Functional Assessment of Chronic Illness Therapy-Spirituality-Expanded scale (meaning/peace, faith, and overall spirituality); the Duke Religion Index (organized and nonorganized religious activities, and intrinsic religiosity); and the Brief RCOPE scale (positive and negative religious coping). Covariates included demographics and clinical characteristics, HIV symptoms, health status, social support, self-esteem, optimism, and depressive symptoms.
The patients' mean (SD) age was 43.3 (8.4) years; 387 (86%) were male; 246 (55%) were minorities; and 358 (80%) indicated a specific religious preference. Ninety-five (23%) participants attended religious services weekly, and 143 (32%) engaged in prayer or meditation at least daily. Three hundred thirty-nine (75%) patients said that their illness had strengthened their faith at least a little, and patients used positive religious coping strategies (e.g., sought God's love and care) more often than negative ones (e.g., wondered whether God has abandoned me; P<.0001). In 8 multivariable models, factors associated with most facets of spirituality/religion included ethnic and racial minority status, greater optimism, less alcohol use, having a religion, greater self-esteem, greater life satisfaction, and lower overall functioning (R2=.16 to .74). Mean levels of spirituality did not change significantly over 12 to 18 months.
Most patients with HIV/AIDS belonged to an organized religion and use their religion to cope with their illness. Patients with greater optimism, greater self-esteem, greater life satisfaction, minorities, and patients who drink less alcohol tend to be both more spiritual and religious. Spirituality levels remain stable over 12 to 18 months.
精神信仰和宗教信仰常常是慢性病患者的核心问题。本研究旨在通过多种精神信仰/宗教信仰测量方法,对大量不同类型的艾滋病病毒/艾滋病患者的精神信仰/宗教信仰进行特征描述,研究精神信仰/宗教信仰与一些人口统计学、临床和心理社会变量之间的关联,并评估12至18个月期间精神信仰水平的变化。
我们对来自4个临床地点的450名患者进行了访谈。通过8种测量方法评估精神信仰/宗教信仰:慢性病治疗功能评估-精神信仰-扩展量表(意义/安宁、信仰和总体精神信仰);杜克宗教指数(有组织和无组织的宗教活动以及内在宗教信仰);以及简短宗教应对量表(积极和消极宗教应对)。协变量包括人口统计学和临床特征、艾滋病病毒症状、健康状况、社会支持、自尊、乐观主义和抑郁症状。
患者的平均(标准差)年龄为43.3(8.4)岁;387名(86%)为男性;246名(55%)为少数族裔;358名(80%)表明有特定的宗教偏好。95名(23%)参与者每周参加宗教仪式,143名(32%)至少每天进行祈祷或冥想。339名(75%)患者表示他们的疾病至少在一定程度上增强了他们的信仰,并且患者使用积极宗教应对策略(例如,寻求上帝的爱和关怀)的频率高于消极策略(例如,怀疑上帝是否抛弃了我;P<0.0001)。在8个多变量模型中,与精神信仰/宗教信仰的大多数方面相关的因素包括少数族裔身份、更高的乐观主义、更少的酒精使用、有宗教信仰、更高的自尊、更高的生活满意度和更低的总体功能状态(R2 = 0.16至0.74)。12至18个月期间,精神信仰的平均水平没有显著变化。
大多数艾滋病病毒/艾滋病患者属于有组织的宗教团体,并利用他们的宗教信仰来应对疾病。更乐观、自尊更高、生活满意度更高的患者、少数族裔以及饮酒较少的患者往往在精神信仰和宗教信仰方面更强。12至18个月期间,精神信仰水平保持稳定。