Den Oudsten Brenda L, Van Heck Guus L, De Vries Jolanda
Department of Psychology and Health, Medical Psychology, Tilburg University, Tilburg, The Netherlands.
Department of Medical Psychology, St. Elisabeth Hospital, Tilburg, The Netherlands.
Mov Disord. 2007 Jul 30;22(10):1390-1401. doi: 10.1002/mds.21539.
The aim of this study is to appraise the suitability of current quality of life (QOL) questionnaires for use in the field of Parkinson's disease (PD). Computerized bibliographic databases were screened for publications from 1960 to December 2006. Predefined selection criteria were used to identify QOL questionnaires in PD studies. Two investigators independently assessed and, subsequently, agreed on a set of multidimensional generic and PD-specific QOL questionnaires. Data were extracted concerning the internal structure, reliability, validity, and responsiveness of the included questionnaires. Sixteen-questionnaires were found, of which 14 questionnaires were included (six generic measures and eight PD-specific). In general, the psychometrics of all the questionnaires were adequately described. Sensitivity to change, however, has been reported for only a limited number of instruments. Almost all included questionnaires used QOL as a keyword, but only two questionnaires fitted the broad QOL definition used in this review. Considering the few "real " QOL questionnaires, we conclude that there is a strong need for such instruments.
本研究旨在评估当前生活质量（QOL）问卷在帕金森病（PD）领域应用的适用性。对计算机化书目数据库进行筛选，以查找1960年至2006年12月期间的出版物。使用预定义的选择标准来识别PD研究中的QOL问卷。两名研究人员独立评估，随后就一组多维通用和PD特异性QOL问卷达成一致。提取了有关纳入问卷的内部结构、信度、效度和反应度的数据。共找到16份问卷，其中14份问卷被纳入（6份通用测量问卷和8份PD特异性问卷）。总体而言，所有问卷的心理测量学特性均得到了充分描述。然而，仅有少数几份工具报告了对变化的敏感性。几乎所有纳入的问卷都将生活质量用作关键词，但只有两份问卷符合本综述中使用的广泛生活质量定义。考虑到真正的“生活质量”问卷数量很少，我们得出结论，对这类工具的需求很大。
