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国际癌症信息服务:一项全球资源。

The International Cancer Information Service: a worldwide resource.

作者信息

Morra Marion E, Thomsen Chris, Vezina Anne, Akkerman Doreen, Bright Mary Anne, Dickens Catherine, Hill David J, Jefford Michael

机构信息

Morra Communications, Milford, CT 06460, USA.

出版信息

J Cancer Educ. 2007 Spring;22(1 Suppl):S61-9. doi: 10.1007/BF03174348.

DOI:10.1007/BF03174348
PMID:17572003
Abstract

The need for accurate and relevant cancer information continues to grow worldwide. While healthcare professionals are the preferred source of cancer information, their time is limited, and patients are often not sure what to ask and their questions do not always come to mind in the physician's office. In its 30-year history, the National Cancer Institute's (NCI's) Cancer Information Service (CIS) has shown that it can increase users' confidence in their ability to seek more information, understand the causes and risk factors for cancer, and participate in decisions about their treatment. In 1996 the International Cancer Information Service Group (ICISG) was formed to facilitate the development of CIS programs throughout the world. A network of nearly 50 cancer organizations from 30 countries, the ICISG strives to provide its member organizations with standards and resources to ensure that the cancer information is of high quality, credible, and up-to-date and that it is delivered in a personal manner that complements and supports the patient/physician relationship. The ICISG offers worldwide resources that can augment the healthcare professionals' offering of information and support to cancer patients and their families.

摘要

全球对准确且相关的癌症信息的需求持续增长。虽然医疗保健专业人员是癌症信息的首选来源,但他们的时间有限,而且患者常常不确定该问什么,并且在医生办公室时他们的问题也并非总能想起来。在其30年的历史中,美国国家癌症研究所(NCI)的癌症信息服务(CIS)已表明,它能够增强用户自行寻求更多信息、了解癌症病因和风险因素以及参与治疗决策的信心。1996年,国际癌症信息服务组织(ICISG)成立,以促进世界各地癌症信息服务项目的发展。ICISG是一个由来自30个国家的近50个癌症组织组成的网络,致力于为其成员组织提供标准和资源,以确保癌症信息质量高、可信且最新,并以一种补充和支持患者/医生关系的个性化方式提供。ICISG提供的全球资源能够增强医疗保健专业人员向癌症患者及其家属提供信息和支持的能力。

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The International Cancer Information Service: a worldwide resource.国际癌症信息服务:一项全球资源。
J Cancer Educ. 2007 Spring;22(1 Suppl):S61-9. doi: 10.1007/BF03174348.
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The National Cancer Institute's Cancer Information Service: a premiere cancer information and education resource for the nation.美国国家癌症研究所癌症信息服务部:全国首屈一指的癌症信息与教育资源机构。
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本文引用的文献

1
The NCI's Cancer Information Service Staff Training Program: a foundation for excellence.美国国立癌症研究所癌症信息服务人员培训项目:卓越之基。
J Cancer Educ. 2007 Spring;22(1 Suppl):S8-17. doi: 10.1007/BF03174341.
2
The NCI Digital Divide Pilot Projects: implications for cancer education.美国国立癌症研究所数字鸿沟试点项目:对癌症教育的影响
J Cancer Educ. 2007 Spring;22(1 Suppl):S56-60. doi: 10.1007/BF03174347.
3
The NCI's Cancer Information Service's Research Continuum Framework: integrating research into cancer education practice (1999-2004).
脑癌患者和支持人员的心理社会照护体验:研究成果的映射。
Support Care Cancer. 2021 Oct;29(10):5559-5569. doi: 10.1007/s00520-021-06071-6. Epub 2021 Mar 12.
4
Distress screening and supportive care referrals used by telephone-based health services: a systematic review.基于电话的健康服务中使用的困扰筛查和支持性护理转介:系统评价。
Support Care Cancer. 2020 May;28(5):2059-2069. doi: 10.1007/s00520-019-05252-8. Epub 2019 Dec 24.
5
Implementing Systematic Screening and Structured Care for Distressed Callers Using Cancer Council's Telephone Services: Protocol for a Randomized Stepped-Wedge Trial.利用癌症理事会电话服务对求助者实施系统筛查和结构化护理:一项随机阶梯楔形试验方案
JMIR Res Protoc. 2019 May 16;8(5):e12473. doi: 10.2196/12473.
6
Are cancer helplines effective in supporting caregivers? A systematic review.癌症援助热线在支持护理人员方面是否有效?系统评价。
Support Care Cancer. 2019 Sep;27(9):3219-3231. doi: 10.1007/s00520-019-04807-z. Epub 2019 May 16.
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A telephone outcall program to support caregivers of people diagnosed with cancer: utility, changes in levels of distress, and unmet needs.电话随访计划以支持癌症患者的照顾者:效用、困扰程度的变化和未满足的需求。
Support Care Cancer. 2018 Nov;26(11):3789-3799. doi: 10.1007/s00520-018-4246-6. Epub 2018 May 15.
8
Utilization of Cancer Information System for Breast Cancer Control in Lagos, Nigeria.尼日利亚拉各斯利用癌症信息系统控制乳腺癌
Pan Afr Med J. 2016 Aug 24;24:323. doi: 10.11604/pamj.2016.24.323.9632. eCollection 2016.
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Exploring the rationale, experience and impact of using Cancer Information and Support (CIS) services: an international qualitative study.探索使用癌症信息与支持(CIS)服务的基本原理、经验及影响:一项国际质性研究。
Support Care Cancer. 2017 Apr;25(4):1221-1228. doi: 10.1007/s00520-016-3513-7. Epub 2016 Dec 1.
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Support Care Cancer. 2015 Apr;23(4):1113-20. doi: 10.1007/s00520-014-2458-y. Epub 2014 Oct 10.
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4
The National Cancer Institute's Cancer Information Service: a premiere cancer information and education resource for the nation.美国国家癌症研究所癌症信息服务部:全国首屈一指的癌症信息与教育资源机构。
J Cancer Educ. 2007 Spring;22(1 Suppl):S2-7. doi: 10.1007/BF03174340.
5
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