Kettis-Lindblad Asa, Ring Lena, Widmark Elisabeth, Bendtsen Preben, Glimelius Bengt
Department of Pharmacy, Uppsala University, Uppsala, Sweden.
J Support Oncol. 2007 Jun;5(6):281-7.
This study explored patients' and oncologists' perceptions of using a computer-administered, individualized quality-of-life (QOL) instrument to support an oncologic consultation. Twenty patients with gastrointestinal cancer (50% female; mean age 60 years) at two hospitals in Sweden completed the Schedule for the Evaluation of Individual Quality of Life-Direct Weight (SEIQoL-DW) and the Disease-Related (DR) SEIQoL-DW and brought the results to the consultation. Afterwards, interviews were conducted with all patients and six of eight doctors. All interviews were audiotaped, transcribed, and analyzed using an interpretivist approach. Most patients and doctors believed that the instrument would facilitate detection of patients' areas of concern and would support monitoring of patients' QOL. This tool may empower the patient, give the doctor a broader picture of the patient, and influence clinical decision-making. The SEIQoL-DW may be a systematic method of stimulating patient-centered care. It apparently encourages patients to reflect upon their own situation and allows them to be seen as whole persons. However, further quantitative evaluation of the intervention's outcomes is required.
本研究探讨了患者和肿瘤学家对于使用计算机管理的个体化生活质量(QOL)工具来辅助肿瘤会诊的看法。瑞典两家医院的20名胃肠癌患者(50%为女性;平均年龄60岁)完成了《个体生活质量评估量表-直接权重法》(SEIQoL-DW)和《疾病相关的SEIQoL-DW》,并将会诊结果带到会诊中。之后,对所有患者以及8名医生中的6名进行了访谈。所有访谈均进行了录音、转录,并采用解释主义方法进行分析。大多数患者和医生认为,该工具将有助于发现患者关注的领域,并支持对患者生活质量的监测。这个工具可能会增强患者的能力,让医生更全面地了解患者,并影响临床决策。SEIQoL-DW可能是一种促进以患者为中心的护理的系统方法。它显然鼓励患者反思自己的情况,并使他们被视为完整的个体。然而,需要对该干预措施的结果进行进一步的定量评估。