Rees G, Saw C L, Lamoureux E L, Keeffe J E
Centre for Eye Research Australia, University of Melbourne, Australia.
Patient Educ Couns. 2007 Dec;69(1-3):39-46. doi: 10.1016/j.pec.2007.06.016. Epub 2007 Aug 7.
To explore the needs of individuals with low vision in order to inform the contents of a low vision self-management (SM) program and determine potential barriers to participation.
Semi-structured interviews were conducted with 48 participants with low vision resulting different from eye conditions. Qualitative analysis was conducted in order to identify major themes.
All participants described a range of consequences as a result of vision loss including difficulties with functional activities, social interaction and emotional distress. Less than half were interested in attending a SM program. Barriers included practical reasons as well as a perceived lack of need and unclear or negative perceptions of such a program.
SM programs for low vision are a promising way to help address the range of difficulties experienced by this population if barriers to participation can be overcome.
SM programs should include vision-specific strategies, training in generic problem-solving and goal setting skills and how to cope with emotional reactions to vision impairment. Programs should be delivered and promoted in such a way to enhance access and encourage uptake by those with a range of vision loss in the community.
探究低视力患者的需求，以便为低视力自我管理（SM）项目的内容提供参考，并确定参与该项目的潜在障碍。
对48名因不同眼部疾病导致低视力的参与者进行了半结构化访谈。进行定性分析以确定主要主题。
所有参与者都描述了视力丧失带来的一系列后果，包括功能活动困难、社交互动问题和情绪困扰。不到一半的人对参加SM项目感兴趣。障碍包括实际原因以及认为缺乏需求和对该项目的不明确或负面看法。
如果能够克服参与障碍，低视力SM项目是帮助解决该人群所经历的一系列困难的一种有前景的方式。
SM项目应包括针对视力的策略、通用问题解决和目标设定技能的培训，以及如何应对视力损害的情绪反应。项目应以增强可及性并鼓励社区中不同视力丧失程度的人参与的方式来实施和推广。
