Paxton S, Stephens D
Australian Research Centre in Sex, Health and Society, LaTrobe University, Australia.
Asia Pac J Public Health. 2007;19(1):8-13. doi: 10.1177/10105395070190010301.
This study examines challenges to HIV-positive people's involvement in AIDS policy making and project design and implementation in Asia. Forty-eight interviews were conducted with key players in the HIV sector in Cambodia, India and Indonesia. The major barrier to involvement is AIDS-related stigma. Most people are diagnosed late in infection and have poor access to antiretroviral drugs. The majority of positive people working in HIV/ AIDS have no training in public health or organisational management and few training opportunities are available. Respondents in all countries said NGOs exploit positive people in order to enhance funding opportunities. Representation on policy making bodies is low because the few people well enough to take on these roles often lack the confidence to assert their needs in front of doctors and government officials. Positive activists need advocacy skills to become more effective, encouragement and support to take on roles as educators and counsellors, sustainable incomes, and medication to stay alive.
本研究探讨了亚洲艾滋病毒呈阳性者在参与艾滋病政策制定、项目设计与实施过程中所面临的挑战。研究人员对柬埔寨、印度和印度尼西亚艾滋病领域的关键人物进行了48次访谈。参与的主要障碍是与艾滋病相关的污名化。大多数人在感染后期才被诊断出来，并且难以获得抗逆转录病毒药物。大多数从事艾滋病毒/艾滋病工作的呈阳性者没有接受过公共卫生或组织管理方面的培训，而且培训机会很少。所有国家的受访者都表示，非政府组织利用呈阳性者来增加获得资金的机会。在决策机构中的代表性很低，因为少数身体状况良好、能够承担这些角色的人往往缺乏在医生和政府官员面前表达自身需求的信心。积极的活动人士需要具备宣传技能才能更有成效，需要得到鼓励和支持以承担教育者和顾问的角色，需要有可持续的收入，还需要药物来维持生命。
