Berzoff Joan, Swantkowski Jennifer, Cohen Lewis M
Smith College School for Social Work, Northampton, Massachusetts 01063, USA.
Palliat Support Care. 2008 Jun;6(2):133-9. doi: 10.1017/S1478951508000217.
Although half a million Americans suffer from end stage renal disease (ESRD), their quality of end-of-life care has been woefully inadequate. The Renal Supportive Care Team is a demonstration project that is designed to elicit and provide for the needs of dialysis patients and their families throughout the trajectory of their illnesses.
Six focus groups, including medical health professionals, dialysis patients, family members, and bereaved family members, discussed how to promote improved palliative care and encourage hospice referral for patients with ESRD.
Respondents agreed that there needed to be greater education of both patients and families regarding all aspects of the disease process, open communication, on-going support between patients, families, and the staff, continuity of care, pain control, and assistance with advance care planning.
Palliative and supportive care issues in ESRD need greater attention.
尽管有50万美国人患有终末期肾病（ESRD），但其临终护理质量一直严重不足。肾脏支持护理团队是一个示范项目，旨在在透析患者及其家人患病的整个过程中，了解并满足他们的需求。
六个焦点小组，包括医疗保健专业人员、透析患者、家庭成员和失去亲人的家庭成员，讨论了如何促进改善姑息治疗，并鼓励为ESRD患者转诊至临终关怀机构。
受访者一致认为，需要在疾病过程的各个方面对患者及其家人进行更多教育，包括开放沟通、患者、家人和工作人员之间的持续支持、护理的连续性、疼痛控制以及在预先护理计划方面提供帮助。
ESRD中的姑息和支持护理问题需要更多关注。
