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影响镰状细胞病青少年独立性的因素。

Factors influencing independence in adolescents with sickle cell disease.

作者信息

Newland Jamesetta A

机构信息

New York University College of Nursing, New York, NY, USA.

出版信息

J Child Adolesc Psychiatr Nurs. 2008 Aug;21(3):177-85. doi: 10.1111/j.1744-6171.2008.00149.x.

Abstract

PROBLEM

Factors that predict successful transition from pediatric to adult care for adolescents with sickle cell disease are not fully understood, making transfer decisions difficult.

METHODS

Seventy-four adolescents (14-21 years) participated in this descriptive correlational study to investigate the relationships of age, gender, knowledge about sickle cell disease, disease severity, and family relationships to independence.

FINDINGS

Knowledge, severity, and family relationships explained only 25% of the variance for independence in the final model; family relationships were inversely correlated.

CONCLUSIONS

Factors exerting stronger influences on independence remain unknown. Cultural factors may be important among this predominantly African American population.

摘要

问题

对于镰状细胞病青少年患者,能预测其从儿科顺利过渡到成人护理阶段的因素尚未完全明确,这使得转诊决策变得困难。

方法

74名青少年(14 - 21岁)参与了这项描述性相关性研究,以探究年龄、性别、对镰状细胞病的了解程度、疾病严重程度以及家庭关系与独立性之间的关系。

结果

在最终模型中,知识、严重程度和家庭关系仅解释了独立性差异的25%;家庭关系呈负相关。

结论

对独立性影响更强的因素仍然未知。在这个以非裔美国人为主的群体中,文化因素可能很重要。

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