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患者对癌症相关疲劳的认知:一项评估其对日常生活影响的调查结果

Patients' perception of cancer-related fatigue: results of a survey to assess the impact on their everyday life.

作者信息

Díaz Nieves, Menjón Salvador, Rolfo Christian, García-Alonso Pilar, Carulla Joan, Magro Ana, Miramón Jose, Rodríguez Cesar A, de Castellar Rous, Gasquet Jose A

机构信息

H. San Juan de Alicante, Alicante, Spain.

出版信息

Clin Transl Oncol. 2008 Nov;10(11):753-7. doi: 10.1007/s12094-008-0282-x.

Abstract

PURPOSE

Fatigue is a cancer-related symptom with great impact on patients' daily lives, but often not discussed with their oncologists. This survey explored functional and psychological fatigue impact among different cancer symptoms according to patient's perception (pp).

METHODS

A cross-sectional, self-administered survey was conducted in 10 oncologist services throughout Spain. Demographical data and tumour diagnoses were collected. Fatigue impact on functional and social activities (Likert scale) and on emotional well-being (visual analogue scale) was measured. The pp of oncologist's response to fatigue report was recorded.

RESULTS

505 surveyed cancer patients were analysed (55.2% women, aged 58.8 years +/-11.7), 97.8% remembered experiencing fatigue during treatment. 27.1% did not discuss their fatigue with their oncologist. Fatigue affected patient's daily routine (> or = 50% of times) included self-care (58.26%), entertainment activities (69.8%), and relationships (71.4%). Fatigue was the most bothersome symptom of cancer.

CONCLUSIONS

Cancer patients perceive fatigue as the symptom with highest impact on their daily living and that substantially affects their emotional and social areas.

摘要

目的

疲劳是一种与癌症相关的症状,对患者的日常生活有很大影响,但患者往往不会与肿瘤学家讨论这一问题。本调查根据患者的认知情况,探讨了不同癌症症状对功能和心理疲劳的影响。

方法

在西班牙的10个肿瘤学家服务机构开展了一项横断面的自填式调查。收集了人口统计学数据和肿瘤诊断信息。测量了疲劳对功能和社交活动(李克特量表)以及情绪健康(视觉模拟量表)的影响。记录了肿瘤学家对疲劳报告的反应情况。

结果

对505名接受调查的癌症患者进行了分析(女性占55.2%,年龄58.8岁±11.7岁),97.8%的患者记得在治疗期间经历过疲劳。27.1%的患者未与肿瘤学家讨论过他们的疲劳问题。疲劳影响患者日常生活(≥50%的时间)的方面包括自我护理(58.26%)、娱乐活动(69.8%)和人际关系(71.4%)。疲劳是癌症最困扰人的症状。

结论

癌症患者认为疲劳是对其日常生活影响最大的症状,且对其情感和社交领域有重大影响。

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