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结直肠癌患者对参与决策的态度。

Colorectal cancer patients' attitudes towards involvement in decision making.

作者信息

Beaver Kinta, Campbell Malcolm, Craven Olive, Jones David, Luker Karen A, Susnerwala Shabbir S

机构信息

School of Nursing, Midwifery & Social Work, University of Manchester, Manchester, UK.

出版信息

Health Expect. 2009 Mar;12(1):27-37. doi: 10.1111/j.1369-7625.2008.00515.x.

DOI:10.1111/j.1369-7625.2008.00515.x
PMID:19250150
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5060478/
Abstract

OBJECTIVES

To design and administer an attitude rating scale, exploring colorectal cancer patients' views of involvement in decision making. To examine the impact of socio-demographic and/or treatment-related factors on decision making. To conduct principal components analysis to determine if the scale could be simplified into a number of factors for future clinical utility.

METHODS

An attitude rating scale was constructed based on previous qualitative work and administered to colorectal cancer patients using a cross-sectional survey approach.

RESULTS

375 questionnaires were returned (81.7% response). For patients it was important to be informed and involved in the decision-making process. Information was not always used to make decisions as patients placed their trust in medical expertise. Women had more positive opinions on decision making and were more likely to want to make decisions. Written information was understood to a greater degree than verbal information. The scale could be simplified to a number of factors, indicating clinical utility.

CONCLUSION

Few studies have explored the attitudes of colorectal cancer patients towards involvement in decision making. This study presents new insights into how patients view the concept of participation; important when considering current policy imperatives in the UK of involving service users in all aspects of care and treatment.

摘要

目的

设计并实施一项态度评定量表,探究结直肠癌患者对参与决策的看法。研究社会人口统计学和/或治疗相关因素对决策的影响。进行主成分分析,以确定该量表是否可简化为若干因素,供未来临床使用。

方法

基于之前的定性研究构建态度评定量表,并采用横断面调查方法对结直肠癌患者进行施测。

结果

共收回375份问卷(回复率81.7%)。对患者而言,了解信息并参与决策过程很重要。由于患者信任医学专业知识,信息并不总是用于决策。女性对决策有更积极的看法,也更倾向于做出决策。书面信息比口头信息的理解程度更高。该量表可简化为若干因素,显示出临床实用性。

结论

很少有研究探讨结直肠癌患者对参与决策的态度。本研究为患者如何看待参与概念提供了新见解;在考虑英国当前让服务使用者参与护理和治疗各方面的政策要求时,这一点很重要。

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Decision-making role preferences and information needs: a comparison of colorectal and breast cancer.决策角色偏好与信息需求:结直肠癌与乳腺癌的比较
Health Expect. 1999 Dec;2(4):266-276. doi: 10.1046/j.1369-6513.1999.00066.x.
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