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本文引用的文献

1
Making sense of risk: an interpretative phenomenological analysis of vulnerability to heart disease.理解风险:对心脏病易感性的阐释现象学分析。
J Health Psychol. 2002 Mar;7(2):157-68. doi: 10.1177/1359105302007002455.
2
Patients' experiences of screening for type 2 diabetes: prospective qualitative study embedded in the ADDITION (Cambridge) randomised controlled trial.2型糖尿病筛查患者的体验:ADDITION(剑桥)随机对照试验中的前瞻性定性研究。
BMJ. 2007 Sep 8;335(7618):490. doi: 10.1136/bmj.39308.392176.BE. Epub 2007 Aug 30.
3
Family history and prevalence of diabetes in the U.S. population: the 6-year results from the National Health and Nutrition Examination Survey (1999-2004).美国人群中糖尿病的家族史及患病率:国家健康与营养检查调查(1999 - 2004年)的6年结果
Diabetes Care. 2007 Oct;30(10):2517-22. doi: 10.2337/dc07-0720. Epub 2007 Jul 18.
4
Perceptions of family history across common diseases: a qualitative study in primary care.常见疾病家族病史认知:一项初级保健中的定性研究
Fam Pract. 2006 Aug;23(4):472-80. doi: 10.1093/fampra/cml006. Epub 2006 Apr 11.
5
Family history of type 2 diabetes: a population-based screening tool for prevention?2型糖尿病家族史:一种基于人群的预防筛查工具?
Genet Med. 2006 Feb;8(2):102-8. doi: 10.1097/01.gim.0000200949.52795.df.
6
'Coming down the line'-- patients' understanding of their family history of common chronic disease.“即将出现”——患者对其常见慢性病家族史的理解
Ann Fam Med. 2005 Sep-Oct;3(5):405-14. doi: 10.1370/afm.368.
7
Self-regulation and the behavioural response to DNA risk information: a theoretical analysis and framework for future research.自我调节与对DNA风险信息的行为反应:一项理论分析及未来研究框架
Soc Sci Med. 2006 Mar;62(6):1360-8. doi: 10.1016/j.socscimed.2005.08.005. Epub 2005 Sep 12.
8
Family history, diabetes, and other demographic and risk factors among participants of the National Health and Nutrition Examination Survey 1999-2002.1999 - 2002年美国国家健康与营养检查调查参与者的家族病史、糖尿病及其他人口统计学和风险因素。
Prev Chronic Dis. 2005 Apr;2(2):A19. Epub 2005 Mar 15.
9
Knowledge and perceptions of diabetes in an Appalachian population.阿巴拉契亚人群对糖尿病的认知与看法。
Prev Chronic Dis. 2005 Apr;2(2):A13. Epub 2005 Mar 15.
10
Perceived risk for Type 2 diabetes in participants in a stepwise population-screening programme.逐步人群筛查项目参与者中2型糖尿病的感知风险。
Diabet Med. 2003 Mar;20(3):210-5. doi: 10.1046/j.1464-5491.2003.00901.x.

糖尿病家族史:探究荷兰糖尿病高危人群的认知

Family history of diabetes: exploring perceptions of people at risk in the Netherlands.

作者信息

Pijl Miranda, Henneman Lidewij, Claassen Liesbeth, Detmar Symone B, Nijpels Giel, Timmermans Danielle R M

机构信息

Department of Public and Occupational Health, EMGO Institute, VU University Medical Center, Amsterdam, the Netherlands.

出版信息

Prev Chronic Dis. 2009 Apr;6(2):A54. Epub 2009 Mar 16.

PMID:19288997
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2687860/
Abstract

INTRODUCTION

The aim of this study was to explore the perceptions of causes, risk, and control with regard to diabetes and the role of family history among people at increased risk for type 2 diabetes.

METHODS

Semistructured interviews were conducted among people aged 57 to 72 years with (n = 9) and without (n = 12) a family history of diabetes.

RESULTS

Participants mentioned different causes for diabetes; these were often a combination of genetic and behavioral factors. Some participants with a family history expressed incoherent causal beliefs; their general ideas about the causes of diabetes did not explain why their relatives were affected. The role of genetics as a cause for diabetes was more pronounced when people perceived diabetes as "running in the family," and this finding did not necessarily relate to a high number of affected relatives. Although people with a family history were aware of the diabetes in their family, they did not always associate their family history with increased risk, nor did they worry about getting diabetes. The absence of diabetes in the family was often used as a reason to perceive a low risk. Participants who primarily perceived genetic predisposition as a cause felt less able to prevent getting diabetes.

CONCLUSION

Future diabetes prevention strategies would benefit from giving more attention to individual perceptions, especially in the context of family history, explaining the multifactorial character of diabetes, and highlighting effective ways to reduce the risk.

摘要

引言

本研究的目的是探讨2型糖尿病风险增加人群对糖尿病病因、风险和控制的认知以及家族史的作用。

方法

对年龄在57至72岁之间有(n = 9)和无(n = 12)糖尿病家族史的人群进行了半结构化访谈。

结果

参与者提到了糖尿病的不同病因;这些病因通常是遗传因素和行为因素的结合。一些有家族史的参与者表达了前后矛盾的因果观念;他们对糖尿病病因的总体看法无法解释为什么他们的亲属会患病。当人们认为糖尿病是“家族遗传”时,遗传因素作为糖尿病病因的作用更为明显,而且这一发现不一定与大量患病亲属有关。虽然有家族史的人知道家族中的糖尿病情况,但他们并不总是将家族史与风险增加联系起来,也不担心患糖尿病。家族中没有糖尿病通常被用作认为风险较低的理由。主要将遗传易感性视为病因的参与者觉得预防患糖尿病的能力较差。

结论

未来的糖尿病预防策略若能更多地关注个体认知,尤其是在家族史背景下,解释糖尿病的多因素特征,并强调降低风险的有效方法,将会从中受益。