Maro Judith C, Platt Richard, Holmes John H, Strom Brian L, Hennessy Sean, Lazarus Ross, Brown Jeffrey S
Massachusetts Institute of Technology, Cambridge, Massachusetts, USA.
Ann Intern Med. 2009 Sep 1;151(5):341-4. doi: 10.7326/0003-4819-151-5-200909010-00139. Epub 2009 Jul 28.
A distributed health data network is a system that allows secure remote analysis of separate data sets, each comprising a different medical organization's or health plan's records. Distributed health data networks are currently being planned that could cover millions of people, permitting studies of comparative clinical effectiveness, best practices, diffusion of medical technologies, and quality of care. These networks could also support assessment of medical product safety and other public health needs. Distributed network technologies allow data holders to control all uses of their data, which overcomes many practical obstacles related to confidentiality, regulation, and proprietary interests. Some of the challenges and potential methods of operation of a multipurpose, multi-institutional distributed health data network are described.
分布式健康数据网络是一种允许对单独数据集进行安全远程分析的系统，每个数据集都包含不同医疗组织或健康计划的记录。目前正在规划的分布式健康数据网络可能覆盖数百万人，从而能够开展比较临床疗效、最佳实践、医疗技术传播以及医疗质量等方面的研究。这些网络还可以支持对医疗产品安全性和其他公共卫生需求的评估。分布式网络技术使数据持有者能够控制其数据的所有使用方式，这克服了许多与保密性、监管和专有利益相关的实际障碍。本文描述了一个多用途、多机构分布式健康数据网络的一些挑战和潜在运营方法。
