National Centre in HIV Social Research, University of New South Wales, Australia.
Sociol Health Illn. 2009 Nov;31(7):1028-42. doi: 10.1111/j.1467-9566.2009.01172.x. Epub 2009 Jul 29.
This paper explores the impact of hepatitis C diagnosis among participants of a recent qualitative study based in New Zealand and Australia. The findings of this research were unique with regard to the small amount of existing literature on the topic. Whilst most social research indicates that diagnosis with hepatitis C is a disruptive or distressing experience, study participants were almost evenly divided between those who reported being distressed by diagnosis and those who described contracting hepatitis C as 'no big deal'. The varied nature of participants' narratives about their hepatitis C diagnosis indicates that the experience of biographical disruption is contextual: dependent upon previous experiences of illness, marginalisation or hardship, and the extent to which hepatitis C is an unknown entity or normalised within community networks. This paper draws on the theoretical frameworks of biographical disruption, normalisation and dys-appearance to illuminate these and other contextual issues informing participants' narratives of unconcern about hepatitis C diagnosis.
本文探讨了在新西兰和澳大利亚进行的一项定性研究参与者中丙型肝炎诊断的影响。这项研究的结果在现有相关文献中较为独特。虽然大多数社会研究表明,丙型肝炎的诊断是一个具有破坏性或令人痛苦的经历,但研究参与者在报告被诊断为丙型肝炎感到痛苦和描述感染丙型肝炎“没什么大不了”的人数几乎平分秋色。参与者对丙型肝炎诊断的叙述的多样性表明,传记性破坏的经历是具有情境性的:取决于以前的疾病、边缘化或困难经历,以及丙型肝炎在社区网络中是未知实体还是正常化的程度。本文借鉴传记性破坏、正常化和消失的理论框架,阐明了这些以及其他影响参与者对丙型肝炎诊断不关注的叙述的情境问题。