University Hospital Gentofte and Department of Nursing Science, University of Aarhus, Denmark.
J Adv Nurs. 2009 Nov;65(11):2409-18. doi: 10.1111/j.1365-2648.2009.05102.x. Epub 2009 Sep 8.
Surgical facial cancer treatment: the silencing of disfigurement in nurse-patient interactions.
The aim of this study was to explore and explain how disfigurement is addressed in interactions between patient and nurse during the period in hospital immediately after undergoing disfiguring facial surgery.
Facial disfigurement as a result of head and neck or eye cancer surgery is associated with psychosocial problems; however no successful intervention program has been developed. Empirically derived knowledge about what goes on in the patient-nurse interaction is missing.
A grounded theory design was used, with data derived from audio-recorded conversations between and individual interviews with 14 patients and their connected nurses, from three participating university hospitals. Data were collected in 2007.
A substantive model with silencing disfigurement as a core category was developed. The model included three categories; minimizing disfigurement, disfigurement is a luxurious problem and another time, another place. A condition of implicit and unverified professional assumptions about addressing the issue of disfigurement became an underlying character. Without this the core category could not exist.
The model elucidates a silencing process maintained by preconceived assumptions which need to be challenged to help patients adjust to their changed appearance after facial cancer treatment.
外科面部癌症治疗：患者与护士互动中对毁容的掩盖。
本研究旨在探讨和解释在经历毁容性面部手术后的住院期间，患者与护士之间的互动中是如何处理毁容问题的。
头颈部或眼部癌症手术后的面部毁容与心理社会问题相关，但尚未开发出成功的干预计划。关于患者与护士互动中发生的情况，缺乏经验性的知识。
采用扎根理论设计，从三个参与的大学医院中，对 14 名患者及其相关护士进行了音频记录的对话和个别访谈，收集了 2007 年的数据。
提出了一个以掩盖毁容为核心类别的实质性模型。该模型包括三个类别：最小化毁容、毁容是奢侈的问题以及另一个时间、另一个地点。对解决毁容问题的隐含和未经证实的专业假设的一种条件成为了一个潜在特征。没有这个核心类别就不可能存在。
该模型阐明了一种由预先存在的假设维持的掩盖过程，需要对其进行挑战，以帮助患者在面部癌症治疗后适应他们的外貌变化。
