Department of Clinical, Neuro- and Developmental Psychology, Faculty of Behavioral and Movement Sciences, Amsterdam Public Health Research Institute, Vrije Universiteit Amsterdam, van der Boechorststraat 7, Amsterdam, Netherlands.
Cancer Center Amsterdam (CCA), Amsterdam UMC, Vrije Universiteit Amsterdam, de Boelelaan 1118, Amsterdam, Netherlands.
Support Care Cancer. 2019 Nov;27(11):4299-4306. doi: 10.1007/s00520-019-04729-w. Epub 2019 Mar 15.
The aim of this study was to investigate among female cancer patients their perceived social support from health care professionals (HCPs), family and friends, and public media, and their perspective on care concerning body changes.
A study-specific questionnaire was completed by 235 female cancer patients. Descriptive statistics were used to describe social support and perspective on care. Logistic regression analyses were used to investigate the associations between social support and sociodemographic and clinical factors, psychosocial impact, and importance of appearance.
More than half of the patients received sufficient support from HCPs (54%) and family and friends (55%), and a third from the media (32%). Higher educated patients and those who found appearance not important during illness perceived lower support from HCPs. Patients without a partner, and those with a surgical treatment only, perceived lower support from family and friends. Patients who were older, higher educated, without a partner, and those who found appearance not important during illness perceived lower support from the media. In total, 15-50% of the patients received sufficient care for different domains of body changes. Patients expressed the highest need for psychological support (28%) and nutrition (28%).
Half of the female cancer patients reported to receive sufficient social support concerning body changes after cancer. Perceived support depended on age, education, relationship status, and treatment modality. The need for more care was moderate.
本研究旨在调查女性癌症患者对医护人员、家人和朋友以及大众媒体提供的社会支持的感知，以及她们对身体变化相关护理的看法。
235 名女性癌症患者填写了专门的调查问卷。采用描述性统计方法描述社会支持和护理看法。采用逻辑回归分析调查社会支持与社会人口学和临床因素、心理社会影响以及对外观重要性之间的关联。
超过一半的患者从医护人员（54%）和家人朋友（55%）获得了充足的支持，三分之一的患者从媒体（32%）获得了支持。受教育程度较高的患者和在患病期间认为外表不重要的患者感知到来自医护人员的支持较少。没有伴侣的患者和仅接受手术治疗的患者感知到来自家人和朋友的支持较少。年龄较大、受教育程度较高、没有伴侣且在患病期间认为外表不重要的患者从媒体获得的支持较少。总的来说，15%-50%的患者在身体变化的不同领域得到了足够的护理。患者表示最需要心理支持（28%）和营养支持（28%）。
一半的女性癌症患者报告在癌症后获得了足够的身体变化相关社会支持。感知到的支持取决于年龄、教育程度、关系状况和治疗方式。对护理的需求中等。
