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硬斑病和嗜酸性筋膜炎患者的心理困扰

Psychological distress in patients with morphea and eosinophilic fasciitis.

作者信息

Kroft Elisabeth B M, de Jong Elke M G J, Evers Andrea W M

机构信息

Radboud University Nijmegen Medical Centre, PO Box 9101, NL-6500 HB Nijmegen, the Netherlands.

出版信息

Arch Dermatol. 2009 Sep;145(9):1017-22. doi: 10.1001/archdermatol.2009.202.

DOI:10.1001/archdermatol.2009.202
PMID:19770441
Abstract

OBJECTIVE

To examine the level of psychological distress and factors contributing to distress in patients with morphea or eosinophilic fasciitis.

DESIGN

Cross-sectional study.

SETTING

Dermatology outpatient clinic of a university hospital.

PARTICIPANTS

Of 120 patients with morphea or eosinophilic fasciitis diagnosed between December 1, 1994, and July 15, 2007, who were enrolled in the study, only 74 completed questionnaires were suitable for data analysis.

MAIN OUTCOME MEASURES

Self-reported responses on the Impact of Chronic Skin Diseases on Daily Life scale measure psychological distress, specifically anxiety and depressed mood.

RESULTS

Psychological functioning was generally impaired in patients with skin disease, particularly among patients with generalized morphea and eosinophilic fasciitis. Twenty-eight patients (38%) were at risk of depression or anxiety. Higher levels of psychological distress were significantly related to greater severity of skin disease; more pain and fatigue; impact of disease on daily life; more perceived stigmatization; illness cognitions of greater helplessness; and less acceptance and less perceived social support.

CONCLUSIONS

Physical and psychosocial aspects play a substantial role in the quality of life for patients with morphea. Physicians should be encouraged to assess the physical and psychosocial factors when treating patients with sclerotic skin diseases. This approach could improve quality of life and ultimately lead to improved dermatological treatment outcomes.

摘要

目的

研究硬斑病或嗜酸性筋膜炎患者的心理困扰程度及导致困扰的因素。

设计

横断面研究。

地点

某大学医院皮肤科门诊。

参与者

在1994年12月1日至2007年7月15日期间确诊为硬斑病或嗜酸性筋膜炎并纳入研究的120例患者中,仅有74份完整问卷适合进行数据分析。

主要观察指标

通过慢性皮肤病对日常生活影响量表的自我报告反应来衡量心理困扰,特别是焦虑和抑郁情绪。

结果

皮肤病患者的心理功能普遍受损,尤其是泛发性硬斑病和嗜酸性筋膜炎患者。28例患者(38%)存在抑郁或焦虑风险。较高水平的心理困扰与皮肤病更严重的程度、更多的疼痛和疲劳、疾病对日常生活的影响、更多的感知污名化、更强烈的无助感疾病认知以及更少的接受度和更少的感知社会支持显著相关。

结论

身体和心理社会方面在硬斑病患者的生活质量中起着重要作用。应鼓励医生在治疗硬化性皮肤病患者时评估身体和心理社会因素。这种方法可以提高生活质量,并最终改善皮肤病治疗效果。

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