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癌症遗传特异性应对措施量表的编制:GRACE。

The development of a cancer genetic-specific measure of coping: the GRACE.

机构信息

School of Psychology and Counselling, Swansea Metropolitan University, Wales, UK.

出版信息

Psychooncology. 2010 Aug;19(8):847-54. doi: 10.1002/pon.1629.

DOI:10.1002/pon.1629
PMID:19823974
Abstract

OBJECTIVE

Generic measures of coping fail to capture the process of undergoing specific health processes such as cancer genetic risk assessment. The Genetic Risk Assessment Coping Evaluation (GRACE) has been developed to provide greater specificity of measurement.

METHOD

Based upon previous research findings, the GRACE measures the degree of stress associated with 11 recognised sources of stress for individuals undergoing the early stages of cancer genetic risk assessment, and the use of up to eight coping strategies they may elicit. This paper reports preliminary data from the piloting of the GRACE within a randomised trial of a coping intervention.

RESULTS

Of the 265 participants who completed and returned their baseline questionnaire (prior to being informed of their level of genetic risk), 257 completed the GRACE. The most highly endorsed sources of stress involved concerns relating to family members, endorsed by over 60% of respondents, and concerns about how the participants would cope if found to be at increased risk (59%). Participants made use of multiple coping strategies across different sources of stress. The most frequently reported coping strategies were emotion-focused, which may reflect the stage of the assessment process.

CONCLUSION

The completion rates for the matrix and specificity of responses provided suggest that the GRACE may be an acceptable measurement tool. Further data collection and validation is ongoing.

摘要

目的

通用的应对措施无法捕捉到经历特定健康过程(如癌症遗传风险评估)的过程。遗传风险评估应对评估(GRACE)的开发是为了提供更具体的测量方法。

方法

基于先前的研究结果,GRACE 衡量了与个体接受癌症遗传风险评估早期阶段的 11 个公认压力源相关的压力程度,以及他们可能产生的最多八种应对策略。本文报告了在应对干预随机试验中对 GRACE 进行试点的初步数据。

结果

在完成并返回基线问卷的 265 名参与者中(在被告知遗传风险水平之前),有 257 名参与者完成了 GRACE。最受认可的压力源涉及对家庭成员的担忧,超过 60%的受访者对此表示担忧,以及对参与者如果被发现处于更高风险时将如何应对的担忧(59%)。参与者在不同的压力源上使用了多种应对策略。报告最多的应对策略是情绪焦点,这可能反映了评估过程的阶段。

结论

矩阵的完成率和提供的响应的特异性表明,GRACE 可能是一种可接受的测量工具。正在进行进一步的数据收集和验证。

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