Unit of Psychology, LUMC, Leiden, The Netherlands.
Patient Educ Couns. 2010 Oct;81(1):23-9. doi: 10.1016/j.pec.2009.10.031. Epub 2009 Dec 1.
To suggest a behavioural research agenda for patients with end-stage renal disease (ESRD) based on a concise review of seven stages of psychosocial research, a literature review, and current behavioural research in other chronic somatic diseases.
Historical behavioural ESRD research was classified. The specialized register of the Cochrane Behavioral Medicine Field was also checked, and additional papers were selected by screening reference lists and related behavioural science journals, to identify promising areas for future research.
The top-five topics identified via the literature search pertain to (1) psychological aspects and interventions, (2) adaptation, coping, and depression, (3) exercise, (4) counseling and education, and (5) compliance. 'Illness and treatment beliefs', 'sexuality', 'suicide', 'family support', and 'self-management interventions', were identified on the basis of research in other chronic illnesses as topics for future research. Regarding theory, the Common-Sense Model (CSM) was judged to offer useful theoretical perspectives; regarding methods, qualitative methods can be a valuable addition to quantitative research methods.
Illness beliefs, treatment beliefs, and self-management behaviours are promising concepts in the assessment and clinical care of ESRD-patients. Cognitive-behavioural treatments appear to have potential and should be specified and elaborated for specific categories and problems of ESRD-patients.
This research agenda is in line with moves towards patient-centred disease-management to improve the quality of medical care for ESRD-patients.
基于对心理社会研究七个阶段的简要回顾、文献回顾以及其他慢性躯体疾病中的当前行为研究，为终末期肾病 (ESRD) 患者提出行为研究议程。
对历史行为性 ESRD 研究进行分类。还检查了 Cochrane 行为医学领域的专业登记处，并通过筛选参考文献和相关行为科学期刊来选择其他论文，以确定未来研究的有前途领域。
通过文献检索确定的前五名主题涉及 (1) 心理方面和干预措施，(2) 适应、应对和抑郁，(3) 运动，(4) 咨询和教育，以及 (5) 依从性。根据其他慢性疾病的研究，确定“疾病和治疗信念”、“性行为”、“自杀”、“家庭支持”和“自我管理干预”作为未来研究的主题。就理论而言，常识模型 (CSM) 被认为提供了有用的理论视角；就方法而言，定性方法可以是定量研究方法的有益补充。
疾病信念、治疗信念和自我管理行为是评估和临床护理 ESRD 患者的有前途的概念。认知行为治疗似乎有潜力，应该针对 ESRD 患者的特定类别和问题进行具体说明和阐述。
该研究议程符合以患者为中心的疾病管理的趋势，旨在提高 ESRD 患者的医疗质量。
