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使用经过验证的通用问卷评估痤疮患者的总体健康状况和生活质量。

Assessment of general health and quality of life in patients with acne using a validated generic questionnaire.

作者信息

Al Robaee Ahmad A

机构信息

Department of Dermatology, College of Medicine, Qassim University, P.O. Box 6655, Buraidah 51452, Saudi Arabia.

出版信息

Acta Dermatovenerol Alp Pannonica Adriat. 2009 Dec;18(4):157-64.

PMID:20043053
Abstract

OBJECTIVES

The study was designed to utilize the SF-36, a validated generic questionnaire, to assess acne patients' view of their general health and quality of life.

METHODS

The subjects were 454 acne patients (237 males, 217 females) visiting an outpatient clinic at Qassim University. An Arabic translation of the SF-36 questionnaire, culturally adapted and validated, was used to assess eight life-quality dimensions. Data regarding demographics, disease grade, duration, and treatment were also included in the questionnaire. The internal consistency reliability of the multi-item scales was assessed using Cronbach's coefficient alpha. Descriptive statistics were conducted with independent and paired-sample t-tests as well as one-way ANOVA for metric variables; and Xi(2) and Fisher's exact tests were used for categorical variables. Spearman's rank correlation was used for associations. All tests were two-sided, and the level of significance was set at phi < 0.05.

RESULTS

The scores for physical functioning, role physical, role emotional, and vitality dimensions were below 60%. About 81.5% of respondents rated their health as either "fair" or "poor", and only 25% said their general health was better than the previous year. Females were more likely to report better general health than males (phi = 0.001). Education level negatively correlated with mental health, role emotional, social functioning, general health, and bodily pain. Rural patients showed better general health (phi = 0.003). Married persons rated their general health better than single patients (phi = 0.002). Mild and shorter-duration acne was associated with a better general health score compared to the previous year (phi = 0.01 and 0.001, respectively). Patients that had received treatment were significantly better regarding role physical, vitality, and mental health dimensions, whereas topical treatment was significantly better in the vitality dimension than oral therapy. The patients treated also rated their general health better than the previous year (phi = 0.0001).

CONCLUSIONS

The presence of acne vulgaris per se is the most significant factor underlying patients' low perception of their general health. Patients' education about the disease and social support play a considerable role in better disease perception and can improve patients' quality of life.

摘要

目的

本研究旨在使用经过验证的通用问卷SF-36,评估痤疮患者对其总体健康状况和生活质量的看法。

方法

研究对象为454名到卡西姆大学门诊就诊的痤疮患者(237名男性,217名女性)。使用经过文化调适和验证的SF-36问卷阿拉伯语译本,评估八个生活质量维度。问卷中还纳入了有关人口统计学、疾病分级、病程和治疗的信息。使用克朗巴哈系数α评估多项目量表的内部一致性信度。对计量变量进行独立样本t检验、配对样本t检验以及单因素方差分析进行描述性统计;对分类变量使用卡方检验和费舍尔精确检验。使用斯皮尔曼等级相关分析关联性。所有检验均为双侧检验,显著性水平设定为p<0.05。

结果

身体功能、身体角色、情绪角色和活力维度的得分低于60%。约81.5%的受访者将其健康状况评为“一般”或“较差”,只有25%的人表示其总体健康状况比上一年更好。女性比男性更有可能报告总体健康状况较好(p=0.001)。教育水平与心理健康、情绪角色、社会功能、总体健康和身体疼痛呈负相关。农村患者的总体健康状况较好(p=0.003)。已婚者对其总体健康状况的评价高于单身患者(p=0.002)。与上一年相比,轻度和病程较短的痤疮患者总体健康得分更高(分别为p=0.01和0.001)。接受过治疗的患者在身体角色、活力和心理健康维度上明显更好,而局部治疗在活力维度上明显优于口服治疗。接受治疗的患者对其总体健康状况的评价也高于上一年(p=0.0001)。

结论

寻常痤疮本身的存在是患者对其总体健康状况认知度低的最主要因素。对患者进行疾病教育和社会支持在更好地认识疾病方面发挥着重要作用,并可改善患者的生活质量。

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