National Center for AIDS/STD Control and Prevention, Beijing, China.
J Acquir Immune Defic Syndr. 2010 Feb;53 Suppl 1(Suppl 1):S111-5. doi: 10.1097/QAI.0b013e3181c7dfa0.
To investigate the preliminary reliability and validity of the Chinese Mandarin version of the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales in a sample of general children and children living in HIV/AIDS-affected families.
The PedsQL 4.0 was administered to 116 children aged 8-18 years from HIV/AIDS-affected families and 115 of their caregivers. The questionnaire was also administered to a control group of 109 children and 107 of their caregivers.
Most of the self-report and proxy-report scales in both groups exceeded the reliability standard of 0.70, whereas the self-report emotional functioning and school functioning subscales were slightly less than 0.70. On average, children living in HIV/AIDS-affected families scored significantly lower than the control group. The level of agreement between self-reports and proxy reports was low. Correlations were higher on average for the younger age group than for the older age group.
The Chinese Mandarin version of PedsQL 4.0 is a valid and reliable instrument for use with children living in HIV families. The health-related quality of life for children living in HIV families is lower than children from ordinary families.
调查儿童生活质量量表（PedsQL）4.0 简体中文版在普通儿童和受艾滋病影响家庭儿童样本中的初步信度和效度。
对 116 名年龄在 8-18 岁的受艾滋病影响家庭的儿童及其 115 名照顾者以及对照组的 109 名儿童及其 107 名照顾者进行 PedsQL 4.0 问卷调查。
两组的大多数自我报告和代理报告量表均超过 0.70 的可靠性标准，而自我报告的情绪功能和学校功能分量表略低于 0.70。平均而言，受艾滋病影响家庭的儿童的得分明显低于对照组。自我报告和代理报告之间的一致性水平较低。对于年龄较小的儿童群体，相关性平均较高。
PedsQL 4.0 的简体中文版是适用于受艾滋病影响家庭儿童的有效且可靠的工具。受艾滋病影响家庭儿童的健康相关生活质量低于普通家庭的儿童。
