Vance Y H, Morse R C, Jenney M E, Eiser C
Department of Psychology, University of Sheffield, UK.
J Child Psychol Psychiatry. 2001 Jul;42(5):661-7.
The relationship between child- and parent-reported quality of life (QOL) and the effects of parental mental health, illness stressors, and child vulnerability was explored using two measures of QOL: the Pediatric Cancer Quality Life-32 (Varni et al., 1998a) and the Disquol (Eiser, Cotter, Oades, Seamark, & Smith, 1999). Thirty-two children with acute lymphoblastic leukaemia (mean age = 8.92 years) and 36 parents completed measures of QOL when attending routine clinic. In addition, parents also completed the General Health Questionnaire (GHQ-28), perception of the child's vulnerability, and illness-related stressors. Significant correlations were found between the overall scores on the two child-completed QOL measures, with a range of poor, moderate to good correlations found between the individual subscales. Poor to moderate concordance was found between child and parent reports. Children who self-reported poorer QOL had mothers who were more depressed. Parents who reported poorer QOL for their child reported more illness stressors and perceived their child as being more vulnerable. Assumptions that concordance between child and parent ratings of QOL is a necessary requirement for new measures of QOL are challenged.
使用两种生活质量（QOL）测量方法，探讨了儿童报告和家长报告的生活质量与父母心理健康、疾病压力源以及儿童易感性之间的关系。这两种测量方法分别是：儿科癌症生活质量量表-32（Varni等人，1998a）和Disquol（Eiser、Cotter、Oades、Seamark和Smith，1999）。32名急性淋巴细胞白血病儿童（平均年龄=8.92岁）及其36名家长在门诊就诊时完成了生活质量测量。此外，家长们还完成了一般健康问卷（GHQ-28）、对孩子易感性的认知以及与疾病相关的压力源调查。研究发现，儿童完成的两种生活质量测量方法的总分之间存在显著相关性，各单个子量表之间的相关性范围从低到高，涵盖差、中等至良好。儿童报告和家长报告之间的一致性为低到中等。自我报告生活质量较差的儿童，其母亲的抑郁程度更高。报告孩子生活质量较差的家长报告了更多的疾病压力源，并认为自己的孩子更易受影响。儿童和家长对生活质量评分的一致性是生活质量新测量方法的必要要求这一假设受到了挑战。
