Mishra Seema, Bhatnagar Sushma, Philip Freeny Ann, Singhal Vasudha, Singh Rana Shiv Pratap, Upadhyay Surjya Prasad, Chauhan Govindi
Unit of Anesthesiology, Dr B.R. Ambedkar, Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, Ansari Nagar, New Delhi, India.
Am J Hosp Palliat Care. 2010 Aug;27(5):316-9. doi: 10.1177/1049909109358309. Epub 2010 Feb 18.
The diagnosis and treatment of cancer is associated with substantial physical, psychological, and social morbidity. The objective of this study was to identify the prevalence of psychosocial concerns in the patients with advanced cancer admitted to our institute.
A total of 100 patients admitted to the inpatient palliative care unit of our institute were enrolled in this study. A descriptive questionnaire that dealt with the patient's psychological acceptance of the disease and emotional distress that accompanies the diagnosis was prepared. Patient's social and spiritual needs were addressed, and the future concerns that the patient is preoccupied with were discussed on a one-on-one basis with the patient himself or herself.
It was found that a majority of patients, though aware of their diagnosis, were not aware of the disease prognosis. There was a generalized anxiety regarding the treatment of the disease and fear of suffering. Most patients preferred to keep the revelation of the diagnosis to those close to them and not reveal it publicly. Financial drain out of resources was a major concern. Future concerns about their own fitness, the settlement of their children, and the family's well-being were seen commonly in almost all the patients.
Attention to psychosocial and spiritual health needs of patients with cancer is an integral part of an effective palliation, though they are less commonly expressed but are strongly felt by patients with cancer. It is therefore recommended that all clinicians and health care providers should address psychosocial health needs as a part of their routine practice.
癌症的诊断和治疗会带来严重的身体、心理和社会问题。本研究的目的是确定我院收治的晚期癌症患者中社会心理问题的发生率。
本研究纳入了我院住院姑息治疗病房收治的100例患者。编制了一份描述性问卷,涉及患者对疾病的心理接受程度以及诊断带来的情绪困扰。探讨了患者的社会和精神需求,并就患者所关注的未来问题与患者本人进行了一对一的交流。
发现大多数患者虽知晓自己的诊断,但并不了解疾病的预后。对疾病治疗普遍存在焦虑,且害怕遭受痛苦。大多数患者倾向于只将诊断结果告知亲近之人,而不对外公开。资源的经济消耗是一个主要担忧。几乎所有患者都普遍担心自己未来的健康状况、子女的安顿以及家人的幸福。
关注癌症患者的社会心理和精神健康需求是有效姑息治疗不可或缺的一部分,尽管这些需求较少被表达,但癌症患者感受强烈。因此,建议所有临床医生和医疗服务提供者应将解决社会心理健康需求作为日常工作的一部分。