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个人健康记录的特征:医学图书馆协会/国家医学图书馆联合电子个人健康记录工作组的调查结果。

Characteristics of personal health records: findings of the Medical Library Association/National Library of Medicine Joint Electronic Personal Health Record Task Force.

机构信息

Medical Library, Louisiana State University Health Sciences Center, Shreveport, LA, USA.

出版信息

J Med Libr Assoc. 2010 Jul;98(3):243-9. doi: 10.3163/1536-5050.98.3.013.

DOI:10.3163/1536-5050.98.3.013
PMID:20648259
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2900995/
Abstract

OBJECTIVES

The Medical Library Association (MLA)/National Library of Medicine (NLM) Joint Electronic Personal Health Record Task Force examined the current state of personal health records (PHRs).

METHODS

A working definition of PHRs was formulated, and a database was built with fields for specified PHR characteristics. PHRs were identified and listed. Each task force member was assigned a portion of the list for data gathering. Findings were recorded in the database.

RESULTS

Of the 117 PHRs identified, 91 were viable. Almost half were standalone products. A number used national standards for nomenclature and/or record structure. Less than half were mobile device enabled. Some were publicly available, and others were offered only to enrollees of particular health plans or employees at particular institutions. A few were targeted to special health conditions.

CONCLUSIONS

The PHR field is very dynamic. While most PHR products have some common elements, their features can vary. PHRs can link their users with librarians and information resources. MLA and NLM have taken an active role in making this connection and in encouraging librarians to assume this assistance role with PHRs.

摘要

目的

医学图书馆协会(MLA)/国家医学图书馆(NLM)联合电子个人健康记录工作组考察了个人健康记录(PHR)的现状。

方法

制定了 PHR 的工作定义,并建立了一个数据库,其中包含指定的 PHR 特征字段。确定并列出了 PHR。为每位工作组成员分配了一部分列表以进行数据收集。将调查结果记录在数据库中。

结果

在确定的 117 个 PHR 中,有 91 个是可行的。将近一半是独立产品。许多产品使用了国家标准的命名法和/或记录结构。不到一半的 PHR 可以在移动设备上使用。有些是公开提供的,而其他则仅提供给特定健康计划的参与者或特定机构的员工。有一些 PHR 是针对特殊健康状况的。

结论

PHR 领域非常活跃。虽然大多数 PHR 产品具有一些共同的要素,但它们的功能可能有所不同。PHR 可以将其用户与图书馆员和信息资源联系起来。MLA 和 NLM 已经在建立这种联系方面发挥了积极作用,并鼓励图书馆员在 PHR 中承担这种协助作用。

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