Reti Shane R, Feldman Henry J, Safran Charles
Division of Clinical Informatics, Department of Medicine, Beth Israel Deaconess Medical Center, 1330 Beacon Street, Suite 400, Brookline, MA 02446, USA.
J Am Med Inform Assoc. 2009 Jan-Feb;16(1):14-7. doi: 10.1197/jamia.M2854. Epub 2008 Oct 24.
Personal health records (PHR) are a modern health technology with the ability to engage patients more fully in their healthcare. Despite widespread interest, there has been little discussion around PHR governance at an organizational level. We develop a governance model and compare it to the practices of some of the early PHR adopters, including hospitals and ambulatory care settings, insurers and health plans, government departments, and commercial sectors. Decision-making structures varied between organizations. Business operations were present in all groups, but patients were not represented in any of the governance structures surveyed. To improve patient-centered care, policy making for PHRs needs to include patient representation at a governance level.
个人健康记录（PHR）是一种现代健康技术，能够让患者更全面地参与自身医疗保健。尽管受到广泛关注，但在组织层面围绕个人健康记录治理的讨论却很少。我们开发了一种治理模型，并将其与一些早期采用个人健康记录的机构的做法进行比较，这些机构包括医院和门诊护理机构、保险公司和健康计划、政府部门以及商业部门。各组织之间的决策结构各不相同。所有群体都有业务运营，但在所调查的任何治理结构中都没有患者代表。为了改善以患者为中心的护理，个人健康记录的政策制定需要在治理层面纳入患者代表。
