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Qualitative analysis of consults by a pediatric advanced care team during its first year of service.

作者信息

Byrne Mary, Tresgallo Mary, Saroyan John, Granowetter Linda, Valoy Glenny, Schechter William

机构信息

Columbia University School of Nursing, New York, NY 10032, USA.

出版信息

Am J Hosp Palliat Care. 2011 Mar;28(2):109-17. doi: 10.1177/1049909110376626. Epub 2010 Sep 11.

Abstract

Phenomenologic analysis of initial consults provided during the first year of a new Pediatric Advanced Care Team (PACT) program provides essential understanding of the experience and inform program direction and future clinical research. Parents bring to the consult a desire to remain experts in their children's lives yet experience vulnerability as they seek assistance in making critical decisions often under conditions of disquieting uncertainty. Dynamic communication efforts involving the referring providers, PACT team members, and family are a key influence in facilitating consults' stated goals and in establishing the integrated palliative paradigm in a tertiary care environment. Validation was provided for a new research infrastructure that will function concurrently with the PACT clinical program in this rapidly evolving field.

摘要

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