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单侧人工耳蜗植入儿童的期望与体验:家长视角

Expectations and Experience of Children with Unilateral Cochlear Implantation: A Parental Perspective.

作者信息

Singh Uday, Kapasi Arva, Patel Nikheel, Khandhar Vinod, Neupane Anuj Kumar

机构信息

1Department of Audiology and Speech Therapy, C. U. Shah Medical College and Hospital, Dudherej Road, Surendranagar, Gujarat India.

2Department of ENT, C. U. Shah Medical College and Hospital, Dudherej Road, Surendranagar, Gujarat India.

出版信息

Indian J Otolaryngol Head Neck Surg. 2019 Dec;71(4):442-448. doi: 10.1007/s12070-019-01611-3. Epub 2019 Feb 9.

DOI:10.1007/s12070-019-01611-3
PMID:31750101
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6838303/
Abstract

To find out parental expectations regarding outcomes of unilateral cochlear implantation prior to surgery and experience received by them after cochlear implantation and 1 year of regular auditory verbal therapy, with respect to the communication abilities, social skills and participation. Total of 200 parents of hearing impaired children participated in the study. A closed ended questionnaire containing 13 questions were used to collect the data. The participants were instructed to complete all the questions provided based on their expectations and experiences. The descriptive statistics were used to determine the frequency and percentage. Among 200 parents, almost all (95%) of the parents expected to have improvement in all the subscale of communication abilities, social skills and participation. 68.5% of the parents experienced improvement in their child's communication abilities, such as, response to quiet sounds, repetition of words without seeing speaker's face, elimination of use of gestures, easy communication and verbal expression for needs, thoughts and feelings. 76% of the parents experienced improvement in social skills and participations, such as, good relationship with elders, siblings and peers, making friends outside the family, actively participating in the activity done by other children and easily accepted by peers in the classroom. A large number of parents met with their expectations and a small proportion of families were found to be disappointed due to high hopes and unrealistic expectation before implantation, which had adverse effect on the children's performance.

摘要

为了解单侧人工耳蜗植入术前家长对手术效果的期望,以及在人工耳蜗植入和1年常规听觉言语治疗后他们所获得的体验,内容涉及沟通能力、社交技能和参与度。共有200名听力受损儿童的家长参与了该研究。使用一份包含13个问题的封闭式问卷来收集数据。参与者被要求根据他们的期望和经历回答所有问题。采用描述性统计来确定频率和百分比。在200名家长中,几乎所有(95%)的家长期望孩子在沟通能力、社交技能和参与度的所有子量表上都有所改善。68.5%的家长体验到孩子的沟通能力有所改善,比如对安静声音的反应、不看说话者面部就能重复单词、不再使用手势、能轻松沟通以及用言语表达需求、想法和感受。76%的家长体验到孩子在社交技能和参与度方面有所改善,比如与长辈、兄弟姐妹和同龄人关系良好、在家庭外交朋友、积极参与其他孩子进行的活动以及在课堂上容易被同龄人接受。大量家长达到了他们的期望,一小部分家庭因植入术前期望过高且不切实际而感到失望,这对孩子的表现产生了不利影响。

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本文引用的文献

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One-year experience with the Cochlear™ Paediatric Implanted Recipient Observational Study (Cochlear P-IROS) in New Delhi, India.印度新德里开展的科利耳™小儿植入受者观察性研究(Cochlear P-IROS)的一年经验。
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Int Arch Otorhinolaryngol. 2017 Apr;21(2):156-160. doi: 10.1055/s-0036-1584228. Epub 2016 May 30.
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A comparison of the anticipated benefits and received outcomes of pediatric cochlear implantation: parental perspectives.小儿人工耳蜗植入预期益处与实际效果的比较:家长观点
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