Kerr Cicely, Murray Elizabeth, Noble Lorraine, Morris Richard, Bottomley Christian, Stevenson Fiona, Patterson David, Peacock Richard, Turner Indra, Jackson Keith, Nazareth Irwin
E-Health Unit, Department of Primary Care and Population Health, University College London, London, UK.
J Med Internet Res. 2010 Dec 2;12(4):e56. doi: 10.2196/jmir.1438.
Existing initiatives to support patient self-management of heart disease do not appear to be reaching patients most in need. Providing self-management programs over the Internet (web-based interventions) might help reduce health disparities by reaching a greater number of patients. However, it is unclear whether they can achieve this goal and whether their effectiveness might be limited by the digital divide.
To explore the effectiveness of a web-based intervention in decreasing inequalities in access to self-management support in patients with coronary heart disease (CHD).
Quantitative and qualitative methods were used to explore use made of a web-based intervention over a period of 9 months. Patients with CHD, with or without home Internet access or previous experience using the Internet, were recruited from primary care centers in diverse socioeconomic and ethnic areas of North London, UK. Patients without home Internet were supported in using the intervention at public Internet services.
Only 10.6% of eligible patients chose to participate (N=168). Participants were predominantly Caucasian well-educated men, with greater proportions of male and younger CHD patients among participants than were registered at participating primary care practices. Most had been diagnosed with CHD a number of years prior to the study. Relatively few had been newly diagnosed or had experienced a cardiac event in the previous 5 years. Most had home Internet access and prior experience using the Internet. A greater use of the intervention was observed in older participants (for each 5-year age increase, OR 1.25 for no, low or high intervention use, 95% CI, 1.06-1.47) and in those that had home Internet access and prior Internet experience (OR 3.74, 95% CI, 1.52-9.22). Less use was observed in participants that had not recently experienced a cardiac event or diagnosis (≥ 5 years since cardiac event or diagnosis; OR 0.69, 95% CI, 0.50-0.95). Gender and level of education were not statistically related to level of use of the intervention. Data suggest that a recent cardiac event or diagnosis increased the need for information and advice in participants. However, participants that had been diagnosed several years ago showed little need for information and support. The inconvenience of public Internet access was a barrier for participants without home Internet access. The use of the intervention by participants with little or no Internet experience was limited by a lack of confidence with computers and discomfort with asking for assistance. It was also influenced by the level of participant need for information and by their perception of the intervention.
The availability of a web-based intervention, with support for use at home or through public Internet services, did not result in a large number or all types of patients with CHD using the intervention for self-management support. The effectiveness of web-based interventions for patients with chronic diseases remains a significant challenge.
现有的支持心脏病患者自我管理的举措似乎并未惠及最需要的患者。通过互联网提供自我管理项目(基于网络的干预措施)可能有助于通过覆盖更多患者来减少健康差距。然而,尚不清楚它们是否能够实现这一目标,以及其有效性是否可能受到数字鸿沟的限制。
探讨基于网络的干预措施在减少冠心病(CHD)患者获得自我管理支持方面的不平等现象的有效性。
采用定量和定性方法,对一项为期9个月的基于网络的干预措施的使用情况进行了探索。从英国伦敦北部不同社会经济和种族地区的初级保健中心招募了患有冠心病的患者,无论其家中是否有互联网接入或以前是否有使用互联网的经验。没有家庭互联网的患者在公共互联网服务处获得使用该干预措施的支持。
只有10.6%的符合条件的患者选择参与(N = 168)。参与者主要是白种人、受过良好教育的男性,参与者中男性和年轻冠心病患者的比例高于参与的初级保健机构登记的患者。大多数人在研究前几年就被诊断出患有冠心病。相对较少的人是新诊断出的或在过去5年中经历过心脏事件。大多数人有家庭互联网接入和以前使用互联网的经验。在年龄较大的参与者中观察到对该干预措施的使用更多(每增加5岁,无、低或高干预措施使用的优势比为1.25,95%置信区间为1.06 - 1.47),以及在那些有家庭互联网接入和以前有互联网经验的参与者中(优势比为3.74,95%置信区间为1.52 - 9.22)。在最近没有经历过心脏事件或诊断的参与者中观察到较少使用(自心脏事件或诊断以来≥5年;优势比为0.69,95%置信区间为0.50 - 0.95)。性别和教育水平与干预措施的使用水平在统计学上没有关联。数据表明,最近的心脏事件或诊断增加了参与者对信息和建议的需求。然而,几年前被诊断出的参与者对信息和支持的需求很少。公共互联网接入的不便对没有家庭互联网接入的参与者来说是一个障碍。很少或没有互联网经验的参与者对该干预措施的使用受到对计算机缺乏信心和寻求帮助时的不适感的限制。它还受到参与者对信息的需求水平及其对该干预措施的认知的影响。
提供基于网络的干预措施,并支持在家中或通过公共互联网服务使用,并没有导致大量或所有类型的冠心病患者使用该干预措施进行自我管理支持。基于网络的干预措施对慢性病患者的有效性仍然是一个重大挑战。