银屑病：它是患者及其家属生活质量的冰山一角吗？
Psoriasis: is it the tip of the iceberg for the quality of life of patients and their families?
机构信息
Psoriasis Clinic, Department of Dermatology, University of Athens, Athens, Greece.
出版信息
J Eur Acad Dermatol Venereol. 2011 Nov;25(11):1282-7. doi: 10.1111/j.1468-3083.2010.03965.x. Epub 2011 Jan 17.
OBJECTIVE
To evaluate the impact of psoriasis on patients' and their relatives' quality of life (QoL).
METHODS
Eighty patients with their accompanying family members were included in the study. For measuring health related QoL (HRQoL) of patients with psoriasis, two questionnaires were used: Short Form 36 Health Survey (SF-36) and EuroQol (EQ-5D). Disease-specific HRQoL was assessed by the Dermatology Life Quality Index. For measuring the quality of life of patients' relatives, a specific questionnaire for dermatological diseases was used (Family Dermatology Life Quality Index, FDLQI).
RESULTS
Of our patients, 88.3% reported that their disease affects in many and different ways their QoL whereas only 11.2% reported that psoriasis does not influence at all their life. Regarding FDLQI, 90% of the participating family members, responded that their relative's psoriasis affected their own QoL.
CONCLUSIONS
Psoriasis is a chronic disease that affects in a cumulative way the quality of life of both patients and their close relatives.
目的
评估银屑病对患者及其亲属生活质量（QoL）的影响。
方法
本研究纳入了 80 名患者及其家属。为了评估银屑病患者的健康相关生活质量（HRQoL），我们使用了两个问卷：SF-36 健康调查简表（SF-36）和 EuroQol（EQ-5D）。皮肤病生活质量指数（Dermatology Life Quality Index）用于评估疾病特异性 HRQoL。为了评估患者亲属的生活质量，我们使用了一种特定的皮肤病问卷（家庭皮肤病生活质量指数，FDLQI）。
结果
我们的患者中有 88.3% 报告说他们的疾病以多种不同的方式影响他们的 QoL，而只有 11.2% 的患者报告说银屑病根本不影响他们的生活。关于 FDLQI，90%的参与家属表示，他们亲属的银屑病影响了他们自己的 QoL。
结论
银屑病是一种慢性疾病，会累积影响患者及其近亲的生活质量。
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