社区参与研究的研究伦理教育：综述与研究议程
Research ethics education for community-engaged research: a review and research agenda.
作者信息
Anderson Emily E, Solomon Stephanie, Heitman Elizabeth, DuBois James M, Fisher Celia B, Kost Rhonda G, Lawless Mary Ellen, Ramsey Cornelia, Jones Bonnie, Ammerman Alice, Ross Lainie Friedman
机构信息
Neiswanger Institute for Bioethics and Health Policy, Stritch School of Medicine, Loyola University Chicago, Maywood, IL 60153, USA.
出版信息
J Empir Res Hum Res Ethics. 2012 Apr;7(2):3-19. doi: 10.1525/jer.2012.7.2.3.
Abstract
Community engagement is increasingly becoming an integral part of research. "Community-engaged research" (CEnR) introduces new stakeholders as well as unique challenges to the protection of participants and the integrity of the research process. We--a group of representatives of CTSA-funded institutions and others who share expertise in research ethics and CEnR--have identified gaps in the literature regarding (1) ethical issues unique to CEnR; (2) the particular instructional needs of academic investigators, community research partners, and IRB members; and (3) best practices for teaching research ethics. This paper presents what we know, as well as what we still need to learn, in order to develop quality research ethics educational materials tailored to the full range of stakeholder groups in CEnR.
摘要
社区参与正日益成为研究不可或缺的一部分。“社区参与研究”（CEnR）引入了新的利益相关者，同时也给参与者保护和研究过程的完整性带来了独特挑战。我们——一群由CTSA资助机构的代表以及其他在研究伦理和社区参与研究方面拥有专业知识的人员——发现文献中存在以下方面的空白：（1）社区参与研究特有的伦理问题；（2）学术研究者、社区研究伙伴和机构审查委员会成员的特定教学需求；（3）研究伦理教学的最佳实践。本文介绍了我们已知的内容以及仍需了解的内容，以便开发适合社区参与研究中所有利益相关者群体的高质量研究伦理教育材料。
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