School of Psychology, University of Sussex, Falmer, Brighton, Sussex, UK.
Br J Health Psychol. 2011 May;16(Pt 2):329-43. doi: 10.1348/135910710X506895. Epub 2011 Mar 9.
To explore the nature and management of needle-related distress in children and adolescents with cystic fibrosis (CF).
Qualitative study using semi-structured interviews.
Fourteen child-parent dyads took part. Children (5 male; 9 female) had a mean age of 12.4 years (range 7-17) and were mostly diagnosed with CF at birth (N= 11). Frequency of needle procedures ranged from once to six times a year. Parents (3 male; 11 female) had a mean age of 41.5 years and were from a variety of socio-economic backgrounds. Interviews were transcribed and analysed using thematic analysis.
Most participants identified previous needle experiences and pain as related to their needle anxiety. Over half of parents and children considered 'taking control' to be the optimum coping strategy. The majority of parents and children thought inhaled nitrous oxide gas during needle procedures was helpful in managing needle-related distress. Parent and staff influences on needle-related distress are also examined.
Needle-related distress in children with CF has a substantial impact on children and their parents, and may lead to management problems and treatment refusal. Psychological and pharmacological interventions could reduce distress and aid management.
探讨囊性纤维化（CF）患儿针相关痛苦的性质和管理。
使用半结构式访谈的定性研究。
14 对儿童-家长参与研究。儿童（5 名男性；9 名女性）平均年龄为 12.4 岁（范围 7-17 岁），大多数在出生时被诊断为 CF（N=11）。针程序的频率从每年一次到六次不等。家长（3 名男性；11 名女性）平均年龄为 41.5 岁，来自各种社会经济背景。访谈转录后采用主题分析进行分析。
大多数参与者认为以前的针经验和疼痛与他们的针焦虑有关。超过一半的父母和孩子认为“控制”是最佳应对策略。大多数父母和孩子认为在针程序中吸入一氧化二氮气体有助于管理针相关痛苦。还检查了父母和工作人员对针相关痛苦的影响。
CF 患儿的针相关痛苦对儿童及其父母有重大影响，并可能导致管理问题和治疗拒绝。心理和药物干预可以减轻痛苦并有助于管理。
