King's College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK.
Health Qual Life Outcomes. 2011 Apr 20;9:27. doi: 10.1186/1477-7525-9-27.
Patient-reported outcome measurement (PROM) plays an increasingly important role in palliative care. A variety of measures exists and is used in clinical care, audit and research. However, little is known about professionals' views using these measures. The aim of this study is to describe the use and experiences of palliative care professionals with outcome measures.
A web-based online survey was conducted in Europe and Africa. Professionals working in clinical care, audit and research in palliative care were invited to the survey via national palliative care associations and various databases. Invitation e-mails were sent with a link to the questionnaire.
Overall participation rate 42% (663/1592), overall completion rate 59% (392/663). The majority of respondents were female (63.4%), mean age 46 years (SD 9). 68.1% respondents from Europe and 73.3% from Africa had experiences with outcome measures in palliative care. Non-users reported time constraints, burden, lack of training and guidance as main reasons. In clinical care/audit, assessment of patients' situation, monitoring changes and evaluation of services were main reasons for use. Choice of OMs for research was influenced by validity of the instrument in palliative care and comparability with international literature. Main problems were related to patient characteristics, staff, and outcome measures. Participants expressed the need for more guidance and training in the use of PROMs.
Professionals need more support for the use and implementation of PROMs in clinical practice and research through training and guidance in order to improve patient care.
患者报告的结局测量（PROM）在姑息治疗中发挥着越来越重要的作用。在临床护理、审计和研究中使用了各种测量工具。然而，对于专业人员使用这些测量工具的看法知之甚少。本研究旨在描述姑息治疗专业人员使用结局测量工具的情况和经验。
在欧洲和非洲进行了一项基于网络的在线调查。通过国家姑息治疗协会和各种数据库向从事姑息治疗临床护理、审计和研究的专业人员发出调查邀请。邀请电子邮件附有问卷链接。
总体参与率为 42%（663/1592），总体完成率为 59%（392/663）。大多数受访者为女性（63.4%），平均年龄为 46 岁（标准差 9）。68.1%的欧洲受访者和 73.3%的非洲受访者在姑息治疗中有使用结局测量工具的经验。非使用者报告时间限制、负担过重、缺乏培训和指导是主要原因。在临床护理/审计中，评估患者情况、监测变化和评估服务是使用的主要原因。研究中选择 OMs 的原因主要受到仪器在姑息治疗中的有效性和与国际文献的可比性的影响。主要问题与患者特征、员工和结局测量有关。参与者表示需要更多关于 PROM 使用的指导和培训。
专业人员需要更多的支持，通过培训和指导，在临床实践和研究中使用 PROM，以改善患者护理。
