University of Gothenburg, Gothenburg, Sweden.
J Fam Nurs. 2011 May;17(2):241-69. doi: 10.1177/1074840711405392.
Children using mechanical ventilation for survival represent a small, but growing, vulnerable population in society. The aim of this study was to describe the existing qualitative research that examined family members' experiences when a child is dependent on ventilator at home. A metasynthesis is an interpretative integration of qualitative research findings based on a systematic literature search. Twelve original research reports focusing on the life situation of ventilator- and technology-dependent children and their families published between 1998 and 2006 were selected as data. Themes from the metasynthesis included experiences of the ill child, siblings, and parents and the meaning of space and place. These findings provide an understanding of the family members' experiences when a child is dependent on a ventilator for survival. Recommendations for future research with this population of families include a greater focus on professional support systems and family strengths and the use of longitudinal research methods using observation and interviews.
使用机械通气来维持生命的儿童在社会中是一个人数虽少但在不断增长的弱势群体。本研究的目的是描述现有的定性研究，这些研究考察了儿童依赖呼吸机在家中的家庭的体验。元综合是一种基于系统文献检索的定性研究结果的解释性综合。选择了 12 份原始研究报告，这些报告的重点是 1998 年至 2006 年间依赖呼吸机和技术的儿童及其家庭的生活状况，作为数据。元综合的主题包括患病儿童、兄弟姐妹和父母的经历，以及空间和地点的意义。这些发现提供了对儿童依赖呼吸机维持生命时家庭成员体验的理解。对这一家庭群体的未来研究的建议包括更加关注专业支持系统和家庭优势，以及使用观察和访谈的纵向研究方法。
